Patient Resources

Patient Support

Patient Resources

National Center for Complementary and Integrative Health
National Center for Complementary and Integrative Health (NCCIH) is the U.S. federal government’s lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine.
Lymphoma Research Foundation
Patient Resources

Lymphoma Research Foundation
The Lymphoma Research Foundation offers a Patient Aid Grant Program that provides limited financial assistance to lymphoma patients who are uninsured or have adequate medical insurance but struggle to pay for expenses related to their lymphoma treatment, such as medical bills, transportation costs to get to and from treatment, lodging expenses during treatment and childcare costs while they are at treatment. For more information, contact the Lymphoma Helpline at 800.500.9976 or visit their website.
Patient Resources

Patient Access Network Foundation - FundFinder
The Patient Access Network (PAN) Foundation has launched FundFinder, a web-based app designed to help you quickly find available financial assistance for chronic, rare and life-threatening illnesses. We often hear that the search for financial assistance is time consuming. Over the last year, PAN developed FundFinder to reduce the time it takes to monitor the status of disease funds across charitable patient assistance foundations.

When you use FundFinder, you can sign up for instant email or text message notifications to learn when financial assistance becomes available for a specific disease at eight charitable patient assistance foundations—eliminating the need to manually monitor their websites.
Patient Resources

Managing Itch
For most patients with cutaneous T-cell lymphoma or CTCL, itchiness, also known as pruritus, can range in degree from a minor irritation to a tormenting sensation that can significantly decrease an individual’s quality of life. Although a definitive cause for itch has yet to be determined, there are various treatments that may help relieve it.
Patient Resources

Skin Care Solutions
With the proper care, skin can often be improved in many cutaneous lymphoma patients. It is important to note that products do not always have to be the most expensive. Quality ingredients are much more important than cost. By knowing the basics about skin care products, you will hopefully be able to improve your quality of life and live your best life possible.
Patient Resources

Skin Care: Wet Wraps and Thick Skin Remedies

Dryness of the skin, irritation, and itchiness are very unpleasant manifestations of cutaneous lymphoma. Fortunately, a lot can be done to improve the condition of the skin with over-the-counter creams or ointments.
Daily Living

Living With Cutaneous Lymphoma...Yes, Living!
You've been diagnosed with cutaneous lymphoma, is it possible to still have a full and rewarding life?
Patient Resources

Look Good…Feel Better
Look Good…Feel Better is a free, non-medical, brand-neutral, national public service program that helps women offset appearance-related changes from cancer treatment. For more information, visit their website or call 800.395.LOOK (5665).
Patient Resources

Shop Well With You
Shop Well With You (SWWY) is a not-for-profit organization and body-image resource for women surviving cancer, their caregivers and healthcare providers. Through its website, SWWY focuses on helping women improve their self-image and quality of life.
Patient Resources

Managing Your Cutaneous Lymphoma When a Specialist Isn't Nearby
Being diagnosed with cutaneous lymphoma while living far from a specialist may present innumerable challenges. However, there are some strategies for patients to utilize that may be employed to effectively handle these situations.
Patient Resources

Lesion Care
For many individuals with cutaneous lymphoma, quality of life is directly related to the current condition of their skin. Recommendations for cleaning, dressing and caring for lesions are provided by Dr. Bizhan Micaily.
Patient Resources

Answers from the Experts: Itch
Cutaneous lymphoma experts provide answers to the question: "What recommendations do you have for managing itch?"
Patient Resources

CUTANEOUS LYMPHOMA AND SKIN MAINTENANCE
Clinical Research Fellow Tara Jennings from the Thomas Jefferson University provides guidelines for skin maintenance as it relates to cutaneous lymphoma.
Patient Resources

Cancer Support Community
The Cancer Support Community (CSC) is an international nonprofit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest quality cancer support to the millions of people touched by cancer. These support services are available through a network of professionally-led community-based centers, hospitals, community oncology practices and online, so that no one has to face cancer alone. For more information, visit their website or contact 888.793.9355.