Patient Resources

Patient Support

Patient Resources

SKINCARE AND TREATMENT OF ITCH
2017 2-day Patient Conference in Manhattan Beach, CA
Expert Presenter: Allister Benjamin Chase, MSN, FNP-BC, AOCNP, Genentech, Public Affairs & Advocacy

Nurse Practitioner Allister Benjamin Chase provides an overview of how to care for skin affected by cutaneous lymphoma and methods for managing itch (pruritus).
Patient Resources

Integrative Medicine - Perspectives & Approach
2017 2-day Patient Conference in Manhatten Beach, CA
Expert Presenter: Arvin Jenab, ND, UC Irvine: Susan Samueli Center for Integrative Medicine

Dr. Jenab explores the place of integrative medicine in treating cutaneous lymphoma.
Patient Resources

American Institute for Cancer Research
The American Institute for Cancer Research (AICR) is a nonprofit organization that fosters research on diet and cancer prevention and educates the public about the results. The AICR’s website offers information and research on food, nutrition and cancer as well as suggested recipes. For more information, visit their website or call 800.843.8114.
Patient Resources

Cook for Your Life
Cook for Your Life is a nonprofit organization whose mission is to improve the health of people touched by cancer by giving them the practical knowledge, tools, and inspiration to cook their way through treatment and into a healthy survivorship. For more information on Cook for Your Life, visit their website or call 212-799-3894.
Patient Resources

Office of Dietary Supplements
The mission of the Office of Dietary Supplements (ODS), within the National Institutes of Health, is to strengthen knowledge and understanding of dietary supplements by evaluating scientific information, stimulating and supporting research, disseminating research results, and educating the public to foster an enhanced quality of life and health for the U.S. population. For more information, visit their website or call 301.435.2920.
Patient Resources

Cancer Survivors Network
The American Cancer Society created the Cancer Survivors Network, an online community of cancer survivors, families and friends. The mission of the program is to provide a “private, secure way to find and communicate with others who share your interests and experiences” and ultimately for participants to share their experiences, strengths and hopes.
Patient Resources

Imerman Angels
Imerman Angels “connects a person fighting cancer today (cancer fighter) with someone who has beaten the same type of cancer (cancer survivor). In addition, Imerman Angels also connects caregivers. A caregiver is a friend or family member who is supporting a cancer fighter. Like fighters and survivors, they may wish to be paired up with another caregiver who relates to and understands their situation. For more information, call 877.274.5529 or visit their website
Patient Resources

INTEGRATIVE MEDICINE
Integrative medicine is the methodology of integrating all aspects of care – from traditional Western medicine modalities to acupuncture, homeopathy, Chinese medicine, ayurvedic, yoga and more. Complementary and alternative medicines (CAM) are therapies that may assist patients in coping with cancer, treatments, and side effects.
Patient Resources

EMPOWER YOURSELF WITH COMPREHENSIVE MEDICAL DOCUMENTATION
Empowered patients are those who become active members of their healthcare team. Obtaining and keeping copies of your medical records and lab results is good advice for any person receiving medical attention.
Conversation
Daily Living

HOW TO TALK TO YOUR FAMILY AND FRIENDS ABOUT CUTANEOUS LYMPHOMA
A question that often arises when newly diagnosed patients call the Cutaneous Lymphoma Foundation is: “What and how should I tell my friends and family?” There is no One-Size-Fits-All answer to this. Social worker, Leora Lowenthal offers some guidelines that allow each reader to come up with their own best solution.
Doctor & Patient
Daily Living

HOW TO GET WHAT YOU REALLY NEED FROM YOUR DOCTOR
This…is…your…life. You have the right, indeed the obligation to yourself and to those who love you, when speaking to your doctor, to ask any questions you have, to get clarity about anything that has been said and to feel free to keep the conversation open until you are satisfied that in the days to come you can ask about any aspect of your treatment.
Friend Support
FROM GUIDE CONTRIBUTORS
Daily Living

LIVING WITH A DIAGNOSIS OF CUTANEOUS LYMPHOMA
You have cancer. Those three words can unleash a riptide of emotions, from disbelief to anger to sadness to fear. All those emotions and more are normal and can be allayed by asking questions, gaining information, and talking with individuals who have either experienced the disease or understand its normal course of action.