CUTANEOUS LYMPHOMA FOUNDATION FORUM Newsletter

The Cutaneous Lymphoma Foundation publishes a printed newsletter, Forum, which provides relevant, timely cutaneous lymphoma news, information and resources to patients, caregivers, physicians, researchers and the larger cutaneous lymphoma community.

This newsletter is the only publication of its kind in the world dedicated to providing news about educational opportunities, disease-specific information, treatment options, treatment side effects, tips for coping with symptoms, resources for support, clinical trials, advocacy updates, Foundation happenings and much more.

Join our mailing list to receive future issues of the Forum. Please let us know if you would like to receive your issues via email, which will help the Foundation save resources in printing/mailing costs.

Electronic versions of back issues of the Forum are available upon request. 

Forum - Issue 4 - 2024

Forum Issue 4 2023 - Advocacy Edition

In this issue:  What is Advocacy • From the President and the Chief Executive Officer • Board of Director News • My Cutaneous Lymphoma Journey • Avenues of Advocacy • CL Foundation Advocacy - Behind the Scenes • Frequently Asked Questions • Emerging Topics in Patient Advocacy

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Forum Issue 3 2023 - International Community Edition

In this issue: Our International Community • GlobalSkin - Global Research on the Impact of Dermatological Diseases • From the Board President and the Chief Executive Officer • Board of Director News • Meet the New Members of Our Team • An International Alliance for Cutaneous Lymphoma • AELIC - Spanish Association of Cutaneous Lymphoma Patients • Our Journeys with Cutaneous Lymphoma • LC Global Patient Survey • Cutaneous Lymphoma International Nurses • CL Foundation Needs Your Continuing Support Network

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Forum Issue 2 2023 - Education & Support Services Edition

In this issue: Quality of Life: Revisited Part 2 • From the Board President and the Chief Executive Officer • A Truly Miraculous Outcome • 2-Day Patient Conference Highlights • Frequently Asked Questions • Your Support

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Forum Issue 1 2023 - Research Edition

In this issue: Cutaneous Lymphoma Research ● From the President and the Chief Executive Officer ● 2022 Catalyst Research Grants - Recipient Updates ● 2021 Catalyst Research Grants - Recipient Updates ● 2022 Young Investigator Awards - ASH ● 2022 Young Investigator Award - SID ● Help Advance Research

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Forum Issue 3 2022

In this issue: Quality of Life: Revisited • From the Board President and the Chief Executive Officer • My Journey With Cutaneous Lymphoma • Legislative Days: AADA and Coalition of Skin Diseases • Frequently Asked Questions • Qualified Charitable Distributions

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Forum Issue 2 2022

In this issue: Patient Empowerment: Finding the Support You Need • From the Board President and the Chief Executive Officer • Everything You Need to Know About Orphan Drugs • Nutrition & Physical Activity: A Lifestyle Medicine Approach • 2022 Catalyst Research Award • Charitable Bequests • Frequently Asked Questions • Virtual Patient Conference Recap • Care-A-Thon

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Forum Issue 1 2022

In this issue: What Is Immunosuppression and When Does It Happen? • From the Board President and the Chief Executive Officer • Frequently Asked Questions - COVID 19 • EORTC-CLG Scientific Meeting Highlights • My Journey With Cutaneous Lymphoma • 2-Day Patient Conference Survey • Frequently Asked Questions • Drug Development • Rare Disease Week on Capitol Hill • Charitable Bequests

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Forum Issue 3 - 2021

In this issue: Sézary Syndrome Part 2: Treatments • From the Board President and the Chief Executive Officer • USCLC Workshop Overview - CBCL • Help Ensure the Future of the Foundation • Living with Lymphomatoid Papulosis • Frequently Asked Questions - COVID 19 • AADA Legislative Conference • Your Community Center

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Forum Issue 2 - 2021

In this issue: Sézary Syndrome: Overview & Diagnosis  • From the Board President and the Chief Executive Officer • Catalyst Research Grant Awardees • CRISPR Therapeutics Research •My Cutaneous Lymphoma Experience • Frequently Asked Questions • Many Ways to Support the Cutaneous Lymphoma Foundation • ISCL Scientific Meeting Highlights • Get Your Move On 2021

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Forum Issue 1 - 2021

In this issue: Feeling Chained by the Invisible Enemy Named Fatigue? • From the Board President and the Chief Executive Officer • Living with Cutaneous Lymphoma: Patient Update • COVID-19: Frequently Asked Questions • Frequently Asked Questions • After COVID • In Memory • Making the Most of Every Dollar You Donate

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