Patient-Focused Research

Patient-focused research is dedicated to collecting information related to an individual's experience living with cutaneous lymphoma and/or its treatment. This research plays an important role in improving patient care and directing future medical research as the individual is the expert on its impact on their life day-to-day.  

MAVORIC clinical trial: Health-Related Quality of Life in CTCL Abstract

In this research, study authors looked at baseline data collected from the MAVORIC clinical trial to understand and identify which aspects of the disease (MF/SS) impact patient health related quality of life (HRQL) the most.

GRIDD Project

The Global Research on the Impact of Dermatological Diseases (GRIDD) project aims to collect global data on the impact of dermatological conditions on patients’ lives. The data collected will help to inform areas of need for improved care, better treatment options, and more affordable medicine for dermatology patients globally.  

2018 Global Patient Survey on Lymphomas & CLL

The Global Patient Survey: Subtype Report presents an overview of the responses cutaneous lymphoma respondents provided in the 2018 Global Patient Survey. Through this survey, patient experience in lymphomas as well as the impact of treatment and care can be better understood, and the Lymphoma Coalition and its global members can bring the patient voice forward.