Patient-Focused Research

Patient-focused research is dedicated to collecting information related to an individual's experience living with cutaneous lymphoma and/or its treatment. This research plays an important role in improving patient care and directing future medical research as the individual is the expert on its impact on their life day-to-day.  

Quality of Life Studies - Call for Participants

A team of rare disease patient researchers at Oregon State University that study and advocate about rare disorders, is currently conducting two research studies, one related to COVID-19 and the other to fatigue. Learn how you can participate.

2018 Global Patient Survey on Lymphomas & CLL

The Global Patient Survey: Subtype Report presents an overview of the responses cutaneous lymphoma respondents provided in the 2018 Global Patient Survey. Through this survey, patient experience in lymphomas as well as the impact of treatment and care can be better understood, and the Lymphoma Coalition and its global members can bring the patient voice forward.