Live Event Videos

The Cutaneous Lymphoma Foundation records many of the 2-Day Patient Conferences and Patient Educational Forums presentations and makes them available through our YouTube channel. We are pleased to provide links to a selection of these events below. To view all of the Foundation's available videos, visit our YouTube channel: CutaneousLymphomaFnd. Be sure to subscribe to our channel to receive notice of new video postings automatically!

2022 International Patient Conference

September 2022 - A playlist of the recorded sessions from our 2022 Virtual International Patient Conference. the playlist includes Cutaneous Lymphoma Basics clinical sessions in English, Dutch, French and Italian languages. 

ANSWERS FROM EXPERTS: QUARTERLY Q&A - August 2022

August 2022 - Finding answers to your questions about cutaneous lymphoma and its treatment can be challenging. These open question and answer events provide access to expert clinicians to respond to your questions about cutaneous lymphoma.

Clinical Panel:
Brad Haverkos, MD, MPH, MS, UC Anschutz Cancer Center
Theresa Pacheco, MD, UCHealth Dermatology Clinic

2022 Virtual Patient Conference

July 2022 - A playlist of the clinical recordings from our 2022 Patient Conference

Webinar: Managing Your School Years

June 2022 - Cutaneous Lymphoma can be hard to deal with and even harder if you are a child or a teenager. Ricky Kitchen, a High School Intervention Specialist with a medical social work background, discusses various ways to support younger patients during their school years and identifies valuable resources that can assist the student and their family.

Speaker: Ricky Kitchen, MSW, MA

Panel Discussion: TELLOMAK Clinical Trial Update

June 2022:  Drs. Pierluigi Porcu and Martine Bagot discuss the history of lacutamab (TELLOMAK) for treating CTCL and provide an update on the phase two clinical trial. Hear from the original researchers on how it started and where it is now.

Researchers
Pierluigi Porcu, MD
Professor of Medical
Oncology, Dermatology, and Cutaneous Biology Director, Division of Hematologic Malignancies
Sidney Kimmel Cancer Center
Philadelphia, Pennsylvania

Martine Bagot, PhD
Professor and Head of Department of Dermatology
Hôpital Saint Louis
Paris, France

Fireside Chat - Steven Rosen, MD

May 2022 - Dr. Steven Rosen joined Susan Thornton to share his story about becoming a clinician and his experience treating cutaneous lymphoma and research. Dr. Rosen is Provost and Chief Scientific Officer for City of Hope National Medical Center and a member of City of Hope's Executive Team. He is also the Director of the Comprehensive Cancer Center and Beckman Research Institute of City of Hope. This is an opportunity to get to know Dr. Rosen and learn about what led him to the field of cutaneous lymphoma.

Clinician:
Steven Rosen, MD, City of Hope National Medical Center

Milestones in Cutaneous Lymphoma Research - PROCLIPI

April 2022 - The Cutaneous Lymphoma International Consortium (CLIC) is working on a prognostic index for mycosis fungoides and Sézary syndrome. This index can help to determine the best course of treatment for patients. Dr. Julia Scarisbrick joined the Cutaneous Lymphoma Foundation's Susan Thornton for an update on the work being done in developing this index.

Clinician:
Julia Scarisbrick, MBhons ChB FRCP MD, University Hospitals Birmingham - UK

ANSWERS FROM EXPERTS: QUARTERLY Q&A - April 2022

April 2022 - Finding answers to your questions about cutaneous lymphoma and its treatment can be challenging. These open question and answer events provide access to expert clinicians to respond to your questions about cutaneous lymphoma.

Clinical Panel:
Larisa Geskin, MD, FAAD, Columbia University Irving Medical Center
Joan Guitart, MD, Northwestern University Feinberg School of Medicine

Webinar: Protecting Your Privacy

March 2022 - Maintaining your privacy and control over disclosing a cancer diagnosis is a personal decision and there may be ramifications of disclosing. Covered in this webinar, options for maintaining your privacy, while still accessing workplace benefits & protections; common situations that can result in accidental disclosure; and other ways to protect your privacy.

Speaker: Monica Bryant, Esq., COO, Triage Cancer

Facebook Live: Story of Hope - Cynthia

February 2022 - Our guest, Cynthia G., joins Susan Thornton to share her story of supporting her adult son when he was diagnosed with cutaneous lymphoma. Learn how Cynthia assisted him to navigate through the often confusing healthcare system. She also offers some advice, based on her experience, on how to respect boundaries, when to let go and when to help. If you are a parent of an adult who has been diagnosed with the disease, Cynthia's story can offer you both help and hope. 

ANSWERS FROM EXPERTS: QUARTERLY Q&A - January 2022

January 2022 - Finding answers to your questions about cutaneous lymphoma and its treatment can be challenging. These open question and answer events provide access to expert clinicians to respond to your questions about cutaneous lymphoma.

Clinical Panel
Keri Chaney, MD, Medical College of Wisconsin
Mary Jo Lechowicz, MD, Winship Cancer Institute of Emory University

Facebook Live: Story of Hope - Keturah

December 2021 - Living with cutaneous lymphoma can be challenging. Keturah H. shares the challenges she faced when diagnosed and how she lives her life with HOPE and inspires others to do the same.

ANSWERS FROM EXPERTS: QUARTERLY Q&A - November 2021

November 2021 - Finding answers to your questions about cutaneous lymphoma and its treatment can be challenging. These open question and answer events provide access to expert clinicians to respond to your questions about cutaneous lymphoma.

Clinical Panel:
Basem William, MD, MRCP(UK), FACP, OhioHealth Medical Group Hematology/Oncology
Steve Daveluy, MD, Wayne State University - Dermatology

Webinar: Immune Suppression and Cutaneous Lymphoma

October 2021 - Dr. Gru from the University of Virginia School of Medicine as he takes us through a deeper look into immunosuppressed, immunocompromised and other similar terms, and how they relate to people affected by cutaneous lymphomas.

Clinician
Alejandro Gru, M.D.
Associate Professor of Pathology
Dermatopathology Section and Fellowship Program Director
University of Virginia School of Medicine