Live Event Videos

The Cutaneous Lymphoma Foundation records many of the 2-Day Patient Conferences and Patient Educational Forums presentations and makes them available through our YouTube channel. We are pleased to provide links to a selection of these events below. To view all of the Foundation's available videos, visit our YouTube channel: CutaneousLymphomaFnd. Be sure to subscribe to our channel to receive notice of new video postings automatically!

Facebook Live: Aaron Mangold, MD

January 2019 - As part two of our 3-part series on treatment options, Dr. Aaron Mangold presented on and took questions about phototherapy treatments for early stage disease. Dr. Mangold is an Assistant Professor of Dermatology at Mayo Clinic in Phoenix, AZ.

Facebook Live: Steven Daveluy, MD

December 2018 - Dr. Steven Daveluy presented a brief overview on topical treatments for early stage cutaneous lymphoma and responded to treatment-related questions. Dr. Daveluy is an Associate Professor of Dermatology at Wayne State School of Medicine.

2018 Patient Educational Forum- Palo Alto

Video recordings from the 2018 Patient Educational Forum in Palo Alto, California.

Facebook Live: Pierluigi Porcu, MD

October 2018 - Dr. Pierluigi Porcu of Thomas Jefferson University Sidney Kimmel Cancer Center joined Susan Thornton of the Cutaneous Lymphoma Foundation to talk about mogamulizumab as a newly approved treatment for cutaneous T-cell lymphoma.

2018 Patient Educational Forum - Raleigh, NC

Video recording and available presentation slides from the 2018 Patient Educational Forum in Raleigh, North Carolina.

Facebook Live: Steven Horwitz, MD

September 2018 - Brentuximab vedotin (ADCETRIS®) has recently been approved as a treatment for cutaneous lymphoma. Dr. Horwitz explains how brentuximab may be used to treat CTCL and the history behind its approval. Steven Horwitz is a medical oncologist specializing in lymphomas at Memorial Sloan Kettering Cancer Center.

Facebook Live: Erin Kopp, MSN, ACNP-BC, NP

August 2018 - Living with cutaneous lymphoma can be stressful. Learn about the importance of self-care for both patients and those who care about them with nurse practitioner Erin Kopp. Erin Kopp is an acute care nurse practitioner at the City of Hope National Medical Center in Duarte, California.

Facebook Live: Jennifer DeSimone, MD, FAAD

July 2018 - Dr. Jennifer DeSimone of Inova Melanoma and Skin Cancer Center, and Susan Thornton, of the Cutaneous Lymphoma Foundation, discuss treatments for patients with advanced cutaneous T-cell lymphoma.

2018 2-Day Patient Conference - Bethesda, MD

Highlights from our 2018 2-Day Patient Conference including a recording of Sunday's keynote speaker, Anne Pariser, MD from NIH.

Facebook Live: Oleg Akilov, MD, PhD

June 2018 - Oleg Akilov, MD, PhD shares recommendations for how to care for your skin when you have cutaneous lymphoma. Dr. Akilov provides practical information related to soaps, shampoos and moisturizers, lotions and ointments. Dr. Akilov is the Director of the Cutaneous Lymphoma Program and Extracorporeal Photopheresis Unit at the University of Pittsburgh.

Facebook Live Interview: Leora Lowenthal, LICSW, MSW

May 2018 - Oncology social worker Leora Lowenthal joined CLF's Susan Thornton to discuss Patient Empowerment: practical and informative presentation on why and how to connect with oncology social services, and how to empower yourself when living with cutaneous lymphoma. Ms. Lowenthal is a senior clinical social worker at Beth Israel Deaconess Medical Center.

Facebook Live Interview: Cecilia Larocca, MD and Marianne Tawa, RN, MSN, ANP

April 2018: Dr. Cecilia Larocca and Marianne Tawa, RN, MSN, ANP, provide a "101" course in the clinical trials, sharing important information to consider if you are interested in participating in a trial. Dr. Larocca and Ms. Tawa are from the Dana Farber Cancer Institute.

2018 Patient Educational Forum - Denver, CO

Video recording and available presentation slides from the 2018 Patient Educational Forum in Denver, CO.

2018 Patient Educational Forum - Troy, MI

Video recording and available presentation slides from the 2018 Patient Educational Forum in Troy, MI.