Live Event Videos

2018 Patient Educational Forum - Raleigh, NC

Video recording and available presentation slides from the 2018 Patient Educational Forum in Raleigh, North Carolina.

Facebook Live: Steven Horwitz, MD

September 2018 - Brentuximab vedotin (ADCETRIS®) has recently been approved as a treatment for cutaneous lymphoma. Dr. Horwitz explains how brentuximab may be used to treat CTCL and the history behind its approval. Steven Horwitz is a medical oncologist specializing in lymphomas at Memorial Sloan Kettering Cancer Center.

Facebook Live: Erin Kopp, MSN, ACNP-BC, NP

August 2018 - Living with cutaneous lymphoma can be stressful. Learn about the importance of self-care for both patients and those who care about them with nurse practitioner Erin Kopp. Erin Kopp is an acute care nurse practitioner at the City of Hope National Medical Center in Duarte, California.

Facebook Live: Jennifer DeSimone, MD, FAAD

July 2018 - Dr. Jennifer DeSimone of Inova Melanoma and Skin Cancer Center, and Susan Thornton, of the Cutaneous Lymphoma Foundation, discuss treatments for patients with advanced cutaneous T-cell lymphoma.

2018 2-Day Patient Conference - Bethesda, MD

Highlights from our 2018 2-Day Patient Conference including a recording of Sunday's keynote speaker, Anne Pariser, MD from NIH.

Facebook Live: Oleg Akilov, MD, PhD

June 2018 - Oleg Akilov, MD, PhD shares recommendations for how to care for your skin when you have cutaneous lymphoma. Dr. Akilov provides practical information related to soaps, shampoos and moisturizers, lotions and ointments. Dr. Akilov is the Director of the Cutaneous Lymphoma Program and Extracorporeal Photopheresis Unit at the University of Pittsburgh.

Facebook Live Interview: Leora Lowenthal, LICSW, MSW

May 2018 - Oncology social worker Leora Lowenthal joined CLF's Susan Thornton to discuss Patient Empowerment: practical and informative presentation on why and how to connect with oncology social services, and how to empower yourself when living with cutaneous lymphoma. Ms. Lowenthal is a senior clinical social worker at Beth Israel Deaconess Medical Center.

Facebook Live Interview: Cecilia Larocca, MD and Marianne Tawa, RN, MSN, ANP

April 2018: Dr. Cecilia Larocca and Marianne Tawa, RN, MSN, ANP, provide a "101" course in the clinical trials, sharing important information to consider if you are interested in participating in a trial. Dr. Larocca and Ms. Tawa are from the Dana Farber Cancer Institute.

2018 Patient Educational Forum - Denver, CO

Video recording and available presentation slides from the 2018 Patient Educational Forum in Denver, CO.

2018 Patient Educational Forum - Troy, MI

Video recording and available presentation slides from the 2018 Patient Educational Forum in Troy, MI.

Facebook Live Interview: Lauren Pinter-Brown, MD

March 2018: Dr. Lauren Pinter-Brown provides guidance on choosing the type of specialist (dermatologist vs oncologist) to see when diagnosed with cutaneous lymphoma. Dr. Pinter-Brown also responded to questions on treatments, diet, staging and other areas of concern. Dr. Pinter-Brown is hematologic oncologist at UC Irvine Chao Family Comprehensive Cancer Center. Within her practice, she has a particular focus on T-cell and skin lymphomas.

Facebook Live Interview: John O'Malley, MD

February 2018: Dr. John O'Malley discusses research on the risk of disease progression in cutaneous lymphoma (including Mycosis Fungoides and Sezary Syndrome), and how itch and infections are treated. Dr. O'Malley is a Clinical Instructor of Dermatology at Brigham and Women's Hospital/Dana-Farber Institute and Harvard Medical School.

Facebook Live Interview: Larisa Geskin, MD

January 2018 - Dr. Larisa Geskin shares important NEW information related to flu and shingles vaccinations, an overview of light therapy treatments including PUVA and UVB, as well as the "FLASH" clinical trial. Dr. Geskin is the Director of the Comprehensive Skin Care Center at Columbia University.

Facebook Live Interview: Pierluigi Porcu, MD

December 2017 - Dr. Pierluigi Porcu of the Jefferson University Hospital, shares information from the 2017 American Society of Hematology (ASH) annual medical meeting. He also discussed the recent FDA approval of Brentuximab for the treatment of cutaneous T-cell lymphoma in the United States. Also the results from the Phase 3 clinical trial of Mogamulizumab and of the MRG-106 trial.