Coronavirus Information

The Cutaneous Lymphoma Foundation is here to serve and support you as we all navigate these uncertain and unprecedented times.  

Every day we continue to  monitor the coronavirus/COVID-19 news and updates in order to make decisions that will allow us to keep you informed and everyone safe.

As previously announced, we made some changes to  our spring in-person patient programs. Some were shifted to an online format while others postponed for a date later in the year.  You can find the most up-to-date program information on our website at: www.clfoundation.org/upcoming-events

Information Related to Cutaneous Lymphoma

United States Cutaneous Lymphoma Consortium
Guidelines for Treatment of Cutaneous Lymphoma During the COVID-19 Pandemic (See pg 3) - Posted April 13, 2020
Supplemental Table - Posted April 13, 2020
General Guidelines for Cutaneous Lymphoma Patients

Cutaneous Lymphoma Foundation's Medical Advisory Board
Cutaneous Lymphoma FAQ About COVID-19

Each person’s journey with cutaneous lymphoma is unique. 

If you have specific questions about your risk or the effect coronavirus could have for you, we recommend contacting your healthcare provider directly.

General Information

It’s important that all of us continue to heed the guidelines set out by the World Health Organization (WHO), Centers for Disease Control and Prevention (CDC) and other health agencies to help minimize the impact and spread of the coronavirus.

World Health Organization (WHO) - advice for the public at large
Coronavirus Disease 2019

United States Centers for Disease Control and Prevention (CDC) - information about and ways to protect yourself against the coronavirus
Coronavirus (COVID-19)
What to Do if You Are Sick
If You Are At Higher Risk
Stop the Spread of Rumors
Use of Cloth Face Coverings to Help Slow the Spread of COVID-19

Federal Emergency Management Agency (FEMA)
Coronavirus Rumor Control

National Institutes of Health (NIH)
Bringing Needed Structure to COVID-19 Drug Development

Friends of Cancer Research (FCR)
Evidence Accelerator Leverages Real-World Evidence in FDA’s Response to Global Pandemic

Financial Assistance

Leukemia & Lymphoma Society (LLS)
LLS has established the LLS COVID-19 Patient Financial Aid Program to help eligible blood cancer patients experiencing financial hardship due to the pandemic. Click on link below for eligibility requirements and instructions on how to apply.
Financial Assistance for Patients Impacted by the COVID-19 Pandemic

Lymphoma Research Foundation (LRF)
LRF’s COVID-19 related financial assistance provides limited financial assistance for people with lymphoma/CLL in active treatment to help with costs including food, transportation, lodging or housing,  utilities, child care, and/or devices (e.g., canes, wheelchairs, ramps, air filters). Click on the link below for eligibility requirements and instructions on how to apply.
COVID-19 Financial Assistance Grant

Patient Access Network (PAN)
To help affected patients cope with unprecedented financial stress relating to the COVID-19 outbreak, also known as coronavirus, PAN is providing direct assistance of $300 on a pre-paid debit card for individuals who have been diagnosed with COVID-19 or directed to self-quarantine due to COVID-19 AND have cancer or a chronic or rare disease. Click on the link below for eligibility requirements and instructions on how to apply.
COVID-19 Treatment and Prevention Fund

National Organization for Rare Disorders (NORD)
COVID-19 Premium & Medical Relief Program

COVID-19 Premium & Medical Relief Program to provide vital support to members of the rare disease community affected by the COVID-19 pandemic. The program will assist those with a confirmed rare disease diagnosis who have been directly impacted by the pandemic through a job loss, reduced work hours, furlough, quarantine, etc. 

The COVID-19 Premium & Medical Relief Program helps with certain out-of-pocket costs associated with health insurance premiums, and supplies eligible uninsured and under-insured patients with support for limited medical expenses. These expenses include medical visits and telehealth consults, laboratory and diagnostic testing, physical therapy and medical equipment.

COVID-19 Critical Relief Program

NORD has created the COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs. 

Through the new program, NORD will provide financial assistance to eligible patients, covering up to $1,000 annually. It provides funds for essential expenses including, but not limited to unexpected utility expenses; cellular or internet service; emergency repairs to car, home or major appliances; and rent or mortgage payment assistance. Interested rare disease patients and families can reach out to NORD to find out if they meet eligibility requirements.

For more information on the NORD COVID-19 assistance programs and to apply, please contact NORD by telephone at 203.242.0497, via email at COVID19assistance@rarediseases.org, or visit rarediseases.org.

Resources for More Information

To assist you in finding useful information related to the coronavirus and additional specific information for those with blood cancers, below are some helpful links with clinically vetted information:

Blood Cancer / Chronic Health Conditions

American Society of Clinical Oncology (ASCO)
Coronavirus 2019: What People With Cancer Need To Know - ASCO

Lymphoma Research Foundation
Coronavirus and What the Lymphoma Community Needs to Know (Webinar Recording)
  John P. Leonard, MD, Weill Cornell Medicine
Understanding COVID-19/Novel Coronavirus: What Patients Need to Know (Factsheet)

Leukemia & Lymphoma Society Blog
Helping Blood Cancer Patients Adjust to the New Normal

Alliance for Aging Research
Common Questions and Answers About COVID19 for Older Adults and People with Chronic Health Conditions


For Older Adults

National Council on Aging
What Older Adults Need to Know 

Alliance for Aging Research
Common Questions and Answers About COVID19 for Older Adults and People with Chronic Health Conditions

Medicare Rights Center Blog
What You Need to Know About Medicare Coverage and the Response to Coronavirus


Health & Wellness

Academy of Nutrition and Dietetics
COVID-19 Nutrition Resource Center

National Council on Aging
Where to Get Food Now
Stay Active and Safe During the Coronavirus

National Institute on Aging
Exercise and Physical Activity

National Institutes of Health (NIH)
Dealing with Stress, Anxiety, and Grief during COVID-19

 

We are here to support you!

As always, we are here to support you in your journey with cutaneous lymphoma.

Please reach us at:
Phone: (248) 644-9014 ext 1
Email: info@clfoundation.org
Mail: PO BOX 374, Birmingham, MI 48012

We promise to respond as quickly as we can.

Our hearts and thoughts go out to each and every one of you. We are in this journey together and look forward to better days in the near future.