Stories of Help and Hope

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: Susan Thornton

Susan Thornton shares her story of being diagnosed with cutaneous lymphoma, its impact on her life and how it led to her current position with the Cutaneous Lymphoma Foundation.

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: ASHLEY MEDICK

Ashley Medicks was diagnosed with cutaneous lymphoma in his late teens. Now in mid-sixties, he shares what he has learned about living with cutaneous lymphoma and how it has influenced his approach to life.*

Mr. Ashley Medicks
Founder/Director
Skinship - UK General Dermatology Helpline

*The opinions expressed in this video are those of the guest speaker and do not necessarily reflect those of the Cutaneous Lymphoma Foundation. Important to note, because each person's body and response to treatment is unique, individuals should work in collaboration with their physician(s) to determine their approach, including what treatment options may be best.

Facebook Live: Caregiver Story

August 2021 - Our guest speaker, Meredith H., cared for her mother after she was diagnosed with late stage mycosis fungoides. Meredith shares the challenges she faced and rewards she experienced as a caregiver.

Our Journey with Cutaneous Lymphoma: Becoming Empowered

Navigating the path to good care can be challenging when you have a rare disease. Caregiver Lisa K. shares her and her husband's experience when he was diagnosed with Sézary syndrome.

My personal journey with cutaneous lymphoma: Neil Dicker

Neil Dicker retired dentist who is an avid cyclist discusses his leading-edge treatments and life in remission.  He was diagnosed in 2005 with Stage 3 of Sezary syndrome, a form of cutaneous T-cell lymphoma (CTCL). Read Neil's story and watch his video.

My Journey with Cutaneous Lymphoma: Joe Carey

Joe Carey shares his experience of taking control of his life and care when living with cutaneous lymphoma.

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: Danna Wessels & Nancy Noble

Danna Wessels and her spouse, Nancy Noble, share their personal story of Danna’s stem-cell transplantation. Their experience provides an honest portrayal of the challenges faced by both patient and caregiver.

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: LAUREL CARLSON

Cutaneous Lymphoma Foundation Board Member Laurel Carlson shares her personal journey with cutaneous lymphoma.

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: Donna Hussey

Author and nurse, Donna Hussey shares her personal journey living with mycosis fungoides.

My Personal Journey with Cutaneous Lymphoma: Christopher Shipp

Christopher Shipp shares his personal journey with cutaneous lymphoma as a young husband and father.

My Personal Journey with Cutaneous Lymphoma: Jan Paro

Janet "Jan" Paro shares her experience living with cutaneous lymphoma and finding hope and empowerment through attending a Cutaneous Lymphoma Foundation 2-Day Patient Conference.

My Personal Journey with Cutaneous Lymphoma

JC Ephraim shares his experience being diagnosed with cutaneous lymphoma and treatment journey. JC also shares the positive impact the Cutaneous Lymphoma Foundation has made in his life.

My Personal Journey with Cutaneous Lymphoma

Brett Weiss shares his experience of being diagnosed with cutaneous lymphoma as a young adult.

You Are Not Alone

CLF Board Member Joe Eischens shares his personal experience of being diagnosed with cutaneous lymphoma and his suggestions for those who are newly diagnosed.