Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in the event via the internet.
Tentative Cities and Dates for 2019
Milwaukee, WI - October
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. These FREE question and answer events with local expert clinicians provide patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are generally held in the evening and are typically two hours in length with dinner included.
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Facebook Live, July 30, 2019
Guest: Joanna Morales, ESQ, Triage Cancer
Topic: Navigating Insurance and Finances When Living With Cutaneous Lymphoma
Time: 7:30 pm (EDT)
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
CLF-TPA Patient Networking Group
Tampa, FL - Saturday, June 22, 2019
CLF-OR Patient Networking Group
Portland, OR - Tuesday, July 9, 2019
CLF-BOS Patient Networking Group
Boston, MA - Tuesday, July 16, 2019
CLF-LV Patient Networking Group
Las Vegas, NV - Monday, August 12, 2019
CLF-DC Patient Networking Group
Fairfax, VA - Wednesday, September 4, 2019
CLF-SLC Patient Networking Group
Salt Lake City, UT - Thursday, September 5, 2019
CLF-NYC Patient Networking Group
New York, NY - Next Meeting Date TBD
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
Lymphoma Research Foundation
Lymphoma Workshops are regional, one-day educational programs that provide information about lymphoma, diagnosis current treatment options, and patient support issues.
Bloomingham, MN - September 14, 2019
Triage Cancer
Triage Cancer offers a series of FREE educational conferences for individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals. Learn valuable information about navigating practical cancer survivorship issues, from beyond diagnosis, into post-treatment survivorship.
Chapel Hill, NC - September 14, 2019
Houston, TX - September 28, 2019
CancerCare
Connect Education Workshops
Leading experts in oncology provide up-to-date information in one-hour educational cancer workshops over the telephone or online.