Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in the event via the internet.
Mark your calendars!
Iowa City, IA - Spring 2020
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
Mark your calendars!
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. These FREE question and answer events with local expert clinicians provide patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are generally held in the evening and are typically two hours in length with dinner included.
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Facebook Live, January 29, 2020
Guest: Neha Mehta, MD, Washington University School of Medicine
Topic: Fertility and Cutaneous Lymphoma
Time: 7:00 - 8:00 pm (ET)
Or join us on our YouTube channel: CutaneousLymphomaFndn
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
Tampa Patient Networking Group
Tampa, FL - Saturday, January 25, 2020
DC Patient Networking Group
Fairfax, VA - Sunday, January 26, 2020
Annual Winter Dinner
Las Vegas Patient Networking Group
Las Vegas, NV - Monday, February 10, 2020
Portland Patient Networking Group
Tualatin, OR - Tuesday, March 3, 2020
Salt Lake City Patient Networking Group
Salt Lake City, UT - Thursday, March 5, 2020
Boston Patient Networking Group
Boston, MA - TBD
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
Lymphoma Research Foundation
Lymphoma Workshops are regional, one-day educational programs that provide information about lymphoma, diagnosis, current treatment options, and patient support issues.
Save the dates:
New England Lymphoma Workshop – Needham, MA – March 28, 2020
Seattle Lymphoma Workshop – Seattle, WA – June 13, 2020
Minnesota Lymphoma Workshop – Bloomington, MN – October 3, 2020
2020 North American Educational Forum on Lymphoma – Phoenix, Arizona – October 23-25, 2020
Triage Cancer offers a series of FREE educational conferences for individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals. Learn valuable information about navigating practical cancer survivorship issues, from beyond diagnosis, into post-treatment survivorship.
Healthy Organizing: How To Regroup And Create New Systems After Cancer - January 20, 2020, 2:00 pm (Central)
Write for Life: Communicating Your Way Through Cancer - February 26, 2020, 6:00 pm (Central)
Disclosure After a Cancer Diagnosis - March 5, 2020, 11:00 am (Central)