Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in event via the internet.
Tentative Cities and Dates for 2019
Milwaukee, WI - October
Framingham, MA - November
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. These FREE question and answer events with local expert clinicians provide patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are generally held in the evening and are typically two hours in length with dinner included.
Tentative Cities and Dates for 2019
Kansas City, MO
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Facebook Live, April 16, 2019
Guest: John Zic, MD, Vanderbilt University Medical Center
Topic: Itch
Time: 7:30 pm - 8:30 pm (EST)
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
CLF-NYC Patient Networking Group
New York, NY - Tuesday, April 16, 2019
CLF-DC Patient Networking Group
Fairfax, VA - Wednesday, May 1, 2019
Guest Speaker: Eric Cohen, RN, MS, OCN, Integrative Nutritionist
CLF-SLC Patient Networking Group
Salt Lake City, UT - Thursday, May 2, 2019
CLF-OR Patient Networking Group
Portland, OR - Tuesday, May 7, 2019
CLF-BOS Patient Networking Group
Boston, MA - Wednesday, May, 2019 - TBD
CLF-TPA Patient Networking Group - coming soon
Tampa, FL
CLF-LV Patient Networking Group
Las Vegas, NV - Next Meeting Date TBD
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
Lymphoma Research Foundation
Lymphoma Workshops are regional, one-day educational programs that provide information about lymphoma, diagnosis current treatment options, and patient support issues.
Brooklyn, NY - May 11, 2019
Triage Cancer
Triage Cancer offers a series of FREE educational conferences for individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals. Learn valuable information about navigating practical cancer survivorship issues, from beyond diagnosis, into post-treatment survivorship.