Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in event via the internet.
Tentative Cities and Dates for 2019
New Orleans, LA - February
Milwaukee, WI - October
New England Area - November
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
California - June 22-23, 2019
More details to come!
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. These FREE question and answer events with local expert clinicians provide patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are generally held in the evening and are typically two hours in length with dinner included.
St. Petersburg, FL - January 26, 2019
Guest Clinician
Lucia Seminario-Vidal, MD, PhD, Moffitt Cancer Center
Lubomir Sokol, MD, PhD, Moffitt Cancer Center
Tentative Cities and Dates for 2019
Philadelphia, PA - March
Kansas City, MO - April
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Tuesday, December 18, 2018
Guest: Steve Daveluy, MD, Wayne State University - Dermatology
Topics: Dr. Daveluy will be answering questions on Topical Skincare treatments for early stage disease.
Time: 7:00 - 8:00 pm (EST)
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
CLF-DC Patient Networking Group
Fairfax, VA - Saturday, December 8, 2018
CLF-LV Patient Networking Group
Las Vegas, NV - Wednesday, December 12, 2018
CLF-OR Patient Networking Group
Portland, OR - Tuesday, January 8, 2019
CLF-SLC Patient Networking Group
Salt Lake City, UT - Thursday, February 7, 2019 (No January Meeting)
CLF-NYC Patient Networking Group
New York, NY - 2019 Meeting Dates TBD
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
CancerCare
Connect Education Workshop - Webcast/Teleconference
Topic: Live with Graft vs. Host Disease Post Allogenic Stem Cell or Bone Marrow Transplantation: New Treatment Approaches
Thursday, December 13, 2018, 1:30 - 2:30 PM (ET)
Lymphoma Research Foundation
Lymphoma Workshops
More details to come...
Triage Cancer: Learn valuable information about navigating practical cancer survivorship issues
Triage Cancer Conferences
More details to come...