Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in the event via the internet.
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
Mark your calendars!
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. These FREE question and answer events with local expert clinicians provide patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are generally held in the evening and are typically two hours in length with dinner included.
Watch this space for upcoming 2020 events!
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Facebook Live, October 25, 2019
Guest: Jennifer Villasenor-Park, MD, PhD, Penn Dermatology
Topic: Lymphomatoid Papulosis
Time: 8:00 - 9:00 pm (EDT)
Watch on YouTube
Facebook Live, November 6, 2019
Guest: Sarah Noor, MD, PhD, Penn Dermatology
Topic: Open Q&A
Time: TBA
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
CLF-DC Patient Networking Group
Fairfax, VA - Saturday, October 12, 2019
Guest Speaker: Dr. Sima Rozati, Johns Hopkins University School of Medicine
CLF-BOS Patient Networking Group
Boston, MA - Wednesday, October 16, 2019
CLF-TPA Patient Networking Group
Tampa, FL - Saturday, October 26, 2019
CLF-OR Patient Networking Group
Portland, OR - Tuesday, November 5, 2019
CLF-SLC Patient Networking Group
Salt Lake City, UT - Thursday, November 7, 2019
CLF-LV Patient Networking Group
Las Vegas, NV - Monday, November 11, 2019
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
Columbia University Medical Center
New York, NY - Cutaneous Lymphoma Patients and Caregivers Support Group and Education Meeting
Wednesday, October 16, 2019, 7:00 to 9:00 PM
Lymphoma Research Foundation
Lymphoma Workshops are regional, one-day educational programs that provide information about lymphoma, diagnosis, current treatment options, and patient support issues.
North American Educational Forum on Lymphoma - Chicago, IL - October 18-19, 2019
Los Angeles, CA - November 9, 2019
Triage Cancer
Triage Cancer offers a series of FREE educational conferences for individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals. Learn valuable information about navigating practical cancer survivorship issues, from beyond diagnosis, into post-treatment survivorship.
Conferences:
Houston, TX - September 28, 2019
Online Webinars:
Avoiding Financial Toxicity
October 16, 2019, 12:00 pm (EST)
FREE live, interactive webinar that will explain the steps that can be taken to reduce the financial impact of a cancer diagnosis.
Caring for Caregivers
November 20, 2019, 3:00 pm (EST)
Whether you are a caregiver for a loved one with cancer, a health care professional, or an individual diagnosed with cancer who cares for others in the cancer community, this webinar will provide practical tips on how you can care for yourself while caring for others, and manage feelings of exhaustion, burn out, and compassion fatigue.
Protecting Your Wallet After Cancer
December 5, 2019, 12:00 pm (EST)
A cancer diagnosis and treatment can have a long-lasting impact on your finances. This webinar will discuss practical tips to reduce the financial impact of a cancer diagnosis, how to maintain or rebuild financial health, and where to find financial assistance.