In response to the COVID-19 (coronavirus), and after much consideration, we have made the difficult decision to transform our Spring 2020 patient programs to live interactive web-based conferences.
There will be no in-person meetings in the following cities. Registration for an online webinar for the following meetings is now available. Visit their event page for more information:
Answers from the Experts LIVE
Saturday, April 4, 2020
Patient Educational Forum
Saturday, May 2, 2020
The Niagara Falls Patient Educational Forum scheduled for Saturday, April 25, 2020 has been postponed until the fall of 2020.
The decision was made in the best interest of our patient populations, program attendees and staff.
2-Day Patient Educational Conference
The Cutaneous Lymphoma Foundation is continually monitoring the developing situation surrounding the spread of coronavirus (COVID-19) and its effects on our ability to host live in-person events. As of right now, we hope to host our annual 2-Day Patient Educational Conference on June 27/28, 2020, and we will continue to assess the situation as it unfolds and provide any updates as soon as we have them. Please rest assured that our top priority is the health and safety of our cutaneous lymphoma community as well as our staff.
Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in the event via the internet.
Niagara Falls, Ontario - Postponed
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. These FREE question and answer events with local expert clinicians provide patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are generally held in the evening and are typically two hours in length with dinner included.
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Facebook Live, March 26, 2020 - Cancelled
Guest: Neda Nikbaht, MD, PhD, FAAD, Jefferson University Hospital Cutaneous Lymphoma Center
Topic: Topical Treatments and Research Update
Time: 7:30 - 8:30 pm (ET)
Or join us on our YouTube channel: CutaneousLymphomaFndn
In response to the COVID-19 (coronavirus), and after much consideration, we have made the difficult decision to suspend our in-person Patient Networking Group meetings.
The decision was made in the best interest of our patient populations, program attendees and any staff that may attend.
The in-person Patient Networking Group will resume as soon any potential risks are reduced and partner institutions will allow. Thank you for your patience and understanding.
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
Boston Patient Networking Group
Boston, MA - Saturday, TBD, 2020
DC Patient Networking Groupc
Fairfax, VA - Saturday, TBD, 2020
Tampa Patient Networking Group
Tampa, FL - Saturday, TBD, 2020
Portland Patient Networking Group
Tualatin, OR - Tuesday, TBD, 2020
Salt Lake City Patient Networking Group
Salt Lake City, UT - Thursday, TBD, 2020
Las Vegas Patient Networking Group
Las Vegas, NV - Monday, TBD, 2020
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
Lymphoma Research Foundation
Lymphoma Workshops are regional, one-day educational programs that provide information about lymphoma, diagnosis, current treatment options, and patient support issues.
New England Lymphoma Workshop – Needham, MA - Postponed
Save the dates:
Seattle Lymphoma Workshop – Seattle, WA – June 13, 2020
Minnesota Lymphoma Workshop – Bloomington, MN – October 3, 2020
2020 North American Educational Forum on Lymphoma – Phoenix, Arizona – October 23-25, 2020
Triage Cancer offers a series of FREE educational conferences for individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals. Learn valuable information about navigating practical cancer survivorship issues, from beyond diagnosis, into post-treatment survivorship.
Managing Side Effects at Work & School - April 22, 2020, 11:00 am (Central)
Disability Insurance, May 20, 2020, 12:00 pm (Central)
Learn more about Triage Cancer's conferences scheduled for the following cities and dates:
Atlanta, Georgia, Saturday, October 3, 2020
Chicago, Illinois, Saturday, October 10, 2020