Whether you are newly-diagnosed or have been living with your diagnosis for a long time, our programs provide information that can help you improve and maintain your quality of life while living with cutaneous lymphoma.
Patient Educational Forums & Webcasts
The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. For those who can't attend in person, we provide a live webcast of the PEF with the opportunity to participate in event via the internet.
Palo Alto, CA - November 3, 2018
Guest Clinicians:
Youn Kim, MD, Stanford Cancer Center
Analuisa Lares, NP, Stanford Cutaneous Lymphoma Clinic
2-Day Patient Conference
The annual 2-Day Patient Conference is two days of learning, connecting and celebrating for patients, their family and/or friends. The 2-Day Conference offers clinical presentations, diagnosis-specific breakout groups, open Q&A discussions with clinicians as well as presentations related to daily-living topics. Unique to the 2-day is the time devoted to creating opportunities for attendees to connect with each other and build friendships with others also impacted by cutaneous lymphoma.
California - June 22 -23, 2019...more details to come!
Answers from the Experts...Live!
For many individuals it can be difficult to find answers to the questions they have about cutaneous lymphoma and its treatment. This FREE question and answer event with local expert clinicians provides patients, caregivers and others affected by the disease to ask their questions in a relaxed atmosphere. The events are held on a weeknight evening and are typically two hours in length with dinner included.
New York City, NY - October 24, 2018
Guest Clinicians
Larisa Geskin, MD, Columbia University Medical Center
Alison Moskowitz, MD, Memorial Sloan Kettering Cancer Center
Jia Ruan, MD, PhD, Weill Cornell Medicine
St Petersburg, FL - January 26, 2019
Guest Clinicians
Lucia Seminario-Vidal, MD, PhD, Moffitt Cancer Center
More details to come....
Facebook Live
Facebook Live events are live-streamed interviews hosted on the Cutaneous Lymphoma Foundation's Facebook page. Guest interviewees include cutaneous lymphoma clinicians and researchers, insurance experts, as well as patients and care partners -- and you'll have the opportunity to ask questions of our guests live! We hope you will join us for these social media events.
Tuesday, October 29, 2018
Guest: Pierluigi Porcu, MD, Sidney Kimmel Cancer Center
Topics: Overview of newly approved Mogamulizumab for treating cutaneous lymphoma
Begin Time: 5:30 pm (ET)
Patient Networking Groups Meetings
The Cutaneous Lymphoma Foundation created networking groups to provide patients and caregivers a place within their local community to meet, share and have opportunities to learn. The Foundation's networking groups are open exclusively to patients and their loved ones in order to provide privacy and encourage open communication.
CLF-SLC Patient Networking Group
Salt Lake City, UT - Thursday, November 1, 2018
CLF-OR Patient Networking Group
Portland, OR - Tuesday, November 6, 2018
CLF-DC Patient Networking Group
Fairfax, VA - Wednesday, November 7, 2018
CLF-NYC Patient Networking Group
New York, NY - Tuesday, November 13, 2018
CLF-LV Patient Networking Group
Las Vegas, NV - Wednesday, November 14, 2018
Collaborative Partner Events
The Cutaneous Lymphoma Foundation provides a list of events held by our collaborative partners that may be of special interest to the cutaneous lymphoma community.
Triage Cancer: Learn valuable information about navigating practical cancer survivorship issues
Triage Cancer Conference
Lewiston, Maine, Saturday, October 27, 2018