Publications and Resources for Healthcare Providers

The Cutaneous Lymphoma Foundation is pleased to provide the following resources to healthcare providers to assist them in their work treating and caring for patients living with cutaneous lymphoma:

Resources Related to Cutaneous Lymphoma

Form Letter for UV Phototherapy Reimbursement Justification with medical literature references
Download this form letter.

National Comprehensive Cancer Network (NCCN) Practice Guidelines in Oncology for Cutaneous T-cell Lymphoma (CTCL) and Cutaneous B-cell Lymphoma (CBCL)
Visit NCCN website to view/download these guidelines - log-in required.  Guides for CTCL and CBCL are located beneath Non-Hodgkin's Lymphomas

Download 2015 Guidelines

2009 Cutaneous Lymphoma Summit Proceedings
Download the 2009 Cutaneous Lymphoma Summit Proceedings.

Quality of Life Study
Download the Quality of Life Study funded by the Cutaneous Lymphoma Foundation.

CTCL Epidemiology Study
CTCL Epidemiology Study funded by the Cutaneous Lymphoma Foundation.



Published Articles Related to Cutaneous Lymphoma

Revisions to the staging and classification of mycosis fungoides and Sezary syndrome: a proposal of the International Society for Cutaneous Lymphomas (ISCL) and the cutaneous lymphoma task force of the European Organization of Research and Treatment of Cancer (EORTC).  

Elise Olsen, Eric Vonderheid, Nicola Pimpinelli, Rein Willemze, Youn Kim, Robert Knobler, Herschel Zackheim, Madeleine Duvic, Teresa Estrach, Stanford Lamberg, Gary Wood, Reinhard Dummer, Annamari Ranki, Gunter Burg, Peter Heald, Mark Pittelkow, Maria-Grazia Bernengo, Wolfram Sterry, Liliane Laroche, Franz Trautinger, and Sean Whittaker.  Blood, May 2007.

EORTC consensus recommendations for the treatment of mycosis fungoides/Sezary syndrome.

Franz Trautinger, Robert Knobler, Rein Willemze, Ketty Peris, Rudolph Stadler, Liliane Laroche, Michel D'Incan, Annamari Ranki, Nicola Pimpinelli, Pablo Oritz-Romero, Reinhard Dummer, Teresa Estrach, and Sean Whittaker.  European Journal of Cancer, 2006.

WHO-EORTC classification for cutaneous lymphomas.  

Rein Willemze, Elain S. Jaffe, Gunter Burg, Lorenzo Cerroni, Emilio Berti, Steven H. Swerdlow, Elisabeth Ralfkiaer, Sergio Chimenti, Jose L. Diaz-Perez, Lyn M. Duncan, Florent Grange, Nancy Lee Harris, Werner Kemptf, Helmut Kerl, Michael Kurrer, Robert Knobler, Nicola Pimpinelli, Christian Sander, Marco Santucci, Wolfram Sterry, Maarten H. Vermeer, Janine Wechsler, Sean Whittaker, and Chris J.L. M. Meijer.  Blood, May 2005.

Mycosis fungoides and Sezary syndrome.

Sam T. Hwang, John E. Janik, Elaine S. Jaffe, and Wyndham H. Wilson. Lancet 2008.

Immunopathogenesis and therapy of cutaneous T-cell lymphoma  

Ellen J. Kim, Stephen Hess, Stephen K. Richardson, Sara Newton, Louise C. Showe, Bernice M. Benoit, Ravi Ubriani, Carmela C. Vittorio, Jacqueline M. Junkins-Hopkins, Maria Wysocka, and Alain H. Rook.  The Journal of Clinical Investigation, April 2005.

The spectrum of hair loss in patients with mycosis fungoides and Sezary syndrome

Ming Yang Bi, AB, Jonathan L. Curry, MD, Angela M. Christiano, PhD, Maria K. Hordinsky, MD, David A. Norris, MD, Vera H. Price, MD, and Madeleine Duvic, MD. Journal of the American Academy of Dermatology, November 2010.

Peripheral T-cell Lymphoma  

Francine M. Foss, Pier Luigi Zinzani, Julie M. Vose, Randy D. Gascoyne, Steve T. Rosen, and Kensei Tobinai. Blood, June 2011.