The Cutaneous Lymphoma Foundation is pleased to provide the following resources to healthcare providers to assist them in their work treating and caring for patients living with cutaneous lymphoma:
Resources Related to Cutaneous Lymphoma
CTCL Staging Tool For Health Care Professionals
Through a combination of up to 20 Yes/No questions paired with real clinical case imagery, the Staging Tool brings HCPs through the TNMB system, which evaluates the extent of disease across 4 compartments: skin (T), lymph nodes (N), visceral/metastasis (M), and blood (B). Upon completion, users are shown a staging which aligns most closely with the patient case provided and are directed to additional clinically relevant information for more guidance.
The tool, though novel in design and approach, draws from the National Comprehensive Cancer Network Guidelines and clinical trial design and staging recommendations from the International Society for Cutaneous Lymphomas (ISCL), the United States Cutaneous Lymphoma Consortium (USCLC), and the European Organisation for Research and Treatment of Cancer (EORTC).
ISCL/EORTC-CLTG/USCLC recommendations for the diagnosis, staging and treatment of early-stage paediatric mycosis fungoides- a Modified Delphi Consensus
Part One: Diagnosis and Staging
Form Letter for UV Phototherapy Reimbursement Justification with medical literature references
Download this form letter.
National Comprehensive Cancer Network (NCCN) Practice Guidelines in Oncology for Cutaneous T-cell Lymphoma (CTCL) and Cutaneous B-cell Lymphoma (CBCL)
Visit NCCN website to view/download these guidelines - log-in required. Guides for CTCL and CBCL are identified as Primary Cutaneous Lymphomas.
2009 Cutaneous Lymphoma Summit Proceedings
Download the 2009 Cutaneous Lymphoma Summit Proceedings.
Quality of Life Study
Download the Quality of Life Study funded by the Cutaneous Lymphoma Foundation.
CTCL Epidemiology Study
CTCL Epidemiology Study funded by the Cutaneous Lymphoma Foundation.
Published Articles Related to Cutaneous Lymphoma
15-ICML International Conference on Malignant Lymphoma
A selection of lymphoma news, patient advocacy and/or policy related topics presented at the 15th International Conference on Malignant Lymphoma (ICML) - summaries are taken from the abstracts and materials available on the ICML website. Provided through the Lymphoma Coalition, July 2019.
Selected Update on Lymphoma - EHA 24 Congress
A selection of lymphoma news, patient advocacy and/or policy related topics presented at the European Hematology Association (EHA) Congress - summaries are taken from the abstracts and materials available on the EHA website. Provided through the Lymphoma Coalition, July 2019.
Francine M. Foss, Pier Luigi Zinzani, Julie M. Vose, Randy D. Gascoyne, Steve T. Rosen, and Kensei Tobinai. Blood, June 2011.
The spectrum of hair loss in patients with mycosis fungoides and Sezary syndrome
Ming Yang Bi, AB, Jonathan L. Curry, MD, Angela M. Christiano, PhD, Maria K. Hordinsky, MD, David A. Norris, MD, Vera H. Price, MD, and Madeleine Duvic, MD. Journal of the American Academy of Dermatology, November 2010.
Mycosis fungoides and Sezary syndrome.
Sam T. Hwang, John E. Janik, Elaine S. Jaffe, and Wyndham H. Wilson. Lancet 2008.
Elise Olsen, Eric Vonderheid, Nicola Pimpinelli, Rein Willemze, Youn Kim, Robert Knobler, Herschel Zackheim, Madeleine Duvic, Teresa Estrach, Stanford Lamberg, Gary Wood, Reinhard Dummer, Annamari Ranki, Gunter Burg, Peter Heald, Mark Pittelkow, Maria-Grazia Bernengo, Wolfram Sterry, Liliane Laroche, Franz Trautinger, and Sean Whittaker. Blood, May 2007.
EORTC consensus recommendations for the treatment of mycosis fungoides/Sezary syndrome.
Franz Trautinger, Robert Knobler, Rein Willemze, Ketty Peris, Rudolph Stadler, Liliane Laroche, Michel D'Incan, Annamari Ranki, Nicola Pimpinelli, Pablo Oritz-Romero, Reinhard Dummer, Teresa Estrach, and Sean Whittaker. European Journal of Cancer, 2006.
WHO-EORTC classification for cutaneous lymphomas.
Rein Willemze, Elain S. Jaffe, Gunter Burg, Lorenzo Cerroni, Emilio Berti, Steven H. Swerdlow, Elisabeth Ralfkiaer, Sergio Chimenti, Jose L. Diaz-Perez, Lyn M. Duncan, Florent Grange, Nancy Lee Harris, Werner Kemptf, Helmut Kerl, Michael Kurrer, Robert Knobler, Nicola Pimpinelli, Christian Sander, Marco Santucci, Wolfram Sterry, Maarten H. Vermeer, Janine Wechsler, Sean Whittaker, and Chris J.L. M. Meijer. Blood, May 2005.
Immunopathogenesis and therapy of cutaneous T-cell lymphoma
Ellen J. Kim, Stephen Hess, Stephen K. Richardson, Sara Newton, Louise C. Showe, Bernice M. Benoit, Ravi Ubriani, Carmela C. Vittorio, Jacqueline M. Junkins-Hopkins, Maria Wysocka, and Alain H. Rook. The Journal of Clinical Investigation, April 2005.