Patient Resources

Patient Support

Answers from the Experts

CANCER KITCHYN SYNC
What role does diet and nutrition play in living a healthier life when diagnosed with lymphoma? Nutritionist and dietician, Cathy Leman provides a three-step method for aligning individualized nutrition with personal health goals when living with cancer.

Recorded at the 2016 2-Day Patient Conference in New York, NY.
Daily Living

Workplace and Cancer
Can I return to work? People living with cancer frequently ask this question. There are a number of laws protecting the rights of employees with cancer and their care partners. It is very important for you to know the legal protections that exist when you have cancer and are working or are re-entering the workforce.
Patient Resources

LRF T-Cell Lymphoma Transportation Assistance Fund
The Lymphoma Research Foundation T-Cell Lymphoma Transportation Assistance Fund grant program provides financial assistance to T-cell lymphoma patients (including those with forms of cutaneous T-cell lymphoma) who are uninsured or have adequate medical insurance but struggle to pay for transportation costs (e.g., mileage, parking, tolls, gas, train tickets, etc.) to get to and from treatment. Grants in the amount of $500 will be awarded and applicants can re-apply every 6 months for a total maximum annual award of $1,000.

Applicants must: 1) Complete an application and demonstrate financial need; and 2) Be currently undergoing T-cell lymphoma treatment as certified by their physician. For more information, visit the LRF's website or call the Lymphoma Helpline at 800.500.9976.
Finding Support
Patient Resources

Finding Support
Cutaneous lymphoma will present you with challenges. But, try to remember that you do not have to cope with your illness alone.
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FROM GUIDE CONTRIBUTORS
Patient Resources

The Impact of Skin Changes
Cutaneous lymphoma is a disease that can change the way you look. This may affect your life in physical, practical and emotional ways.
Hair loss
Patient Resources

HAIR LOSS AND CUTANEOUS LYMPHOMA
Cutaneous T-cell Lymphoma (CTCL) can sometimes cause a loss of hair, or alopecia, which can affect any area of the body.
Patient Resources

Cancer Financial Assistance Coalition
The Cancer Financial Assistance Coalition (CFAC) is a coalition of organizations helping cancer patients manage their financial challenges. CFAC educates patients and providers about existing resources and links to other organizations that can provide additional assistance.
FROM GUIDE CONTRIBUTORS
Daily Living

Sexuality
Being intimate can be challenging when you have cutaneous lymphoma.
Patient Resources

Blood Cancer United
Blood Cancer United (formerly the Leukemia & Lymphoma Society) offers a range of patient financial assistance programs (coverage, care, transportation). Programs may change periodically, so we recommend you regularly visit their website for details.

Contact us: (877) 557-2672 | financialassistance@bloodcancerunited.org
Patient Resources

Cancer + Careers
Cancer + Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.
Patient Resources

PALS SkyHope
Patient Airlift Services Inc. (PALS), founded in 2010, is a nonprofit that arranges free flights for medical patients requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially. PALS SkyHope helps when medical care is 2+hours away from home. Visit the website or call (888) 818-1231 for more information.
Patient Resources

Corporate Angel Network
Through the generosity of many large corporations, the Corporate Angel Network fills empty seats on corporate jets with cancer patients in need of travel assistance. Eligibility to participate is open to all cancer patients, bone marrow donors and bone marrow recipients who are ambulatory and not in need of medical support while traveling. Eligibility is not based on financial need and patients may travel as often as necessary. For more information, visit their website or contact 866.328.1313.
Patient Resources

Angel Flight
Angel Flight arranges free air transportation in response to health care and other compelling human needs. For more information, contact 918.749.8992 or visit their website.
Patient Resources

Miracle Flights
Miracle Flights is a nonprofit organization that flies individuals and families to treatment, second opinions, follow-up visits and clinical trials from the U.S. to U.S.-based treatment centers. The service is available for adults and children, and is primarily rare disease focused, not disease specific. There are income guidelines and proof required. To learn more, visit their website, contact their flight department via email flightspecialist@miracleflights.org or call 800-359-1711.