Sexuality

This piece was written by Guide Contributors

Being intimate can be challenging when you have cutaneous lymphoma

Being intimate can be challenging when you have cutaneous lymphoma for the simple reason that plaques, lesions and rashes can be so uncomfortable that you don’t want to be touched. Also, sometimes people with cutaneous lymphoma feel self-conscious or uninterested in being intimate because of changes to their physical appearance. Some symptoms make the skin feel so raw that a physical experience would be aggravating. From itch to burning to lathering up with ointment after a shower, the details of this disease can surely create an obstacle to intimacy.

For illustrative purposes only.

Couples work through this

There are times when you just won’t be sexual, and hopefully, your partner understands this. Other times, when there aren’t flare-ups, you’ll likely feel as sexual as you normally would. Some younger patients even go on to have children despite their disease.

Just like you need a solid support system around you to help you weather the ups and downs of this disease, you also need a partner whose love and understanding runs deeper than the physical. Says one patient, “When you have a disease, any kind of terrible disease, you need a partner who’s very, very understanding. It’s frustrating, from the care side, to not know what you can do to make the person you love feel better.”

Communication is key throughout the course of this disease

Letting your partner know when it’s okay to touch and when it’s not, explaining gently that it’s not a rejection of the other person but a symptom of the condition of your skin, is important. As one patient says, “You have to tell your partner, ‘I love you with all my heart, but I can’t explain what I’m going through’ and I’m sure the partner will understand, knowing that you love each other.” Riding the roller coaster of a chronic disease can actually help you grow stronger in love.

Learn More

Fertility

Couple with physician
When it comes to family planning, using even mild therapies for a long period of time can be an issue. Because many therapies only work while they are being given, aspects of family planning often need to be considered when choosing a therapy.

Staging Cutaneous T-cell Lymphoma

Staging describes how much of the body is affected by cutaneous lymphoma and where. Identifying your stage is important in determining appropriate treatment.
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