Cutaneous lymphoma can appear in many different ways, and each person’s path is uniquely their own. In this collection, people share their stories without focusing on the specific variant or type. Their stories offer honesty, hope, and connection--reminding us that even though the condition can be complex, the human side of it is something we can all understand.
Just a reminder that personal experiences are unique and don’t always reflect the Foundation’s viewpoint. And while we hope these stories encourage you, they are not meant to replace medical advice—please follow the guidance of your healthcare professional.
My CTCL Story
Craig was diagnosed with cutaneous lymphoma in 2004 after an initial misdiagnosis of eczema. In his story, he reflects on his experience, including treatment with UVB therapy and the lessons he learned along the way. By sharing his experience, Craig hopes to help others living with the disease feel understood and less alone.
My Story of Hope
Cathy's experience is unique as she is a nurse who, while training to be a physician assistant in dermatology, recognized her own cutaneous lymphoma diagnosis. Her journey through treatments and pregnancy have made her passionate about helping the patient community she serves.