Cutaneous lymphoma can appear in many different ways, and each person’s path is uniquely their own. In this collection, people share their stories about living with folliculotropic mycosis fungoides (MF). Their stories offer honesty, hope, and connection--reminding us that even though the condition can be complex, the human side of it is something we can all understand.
Just a reminder that personal experiences are unique and don’t always reflect the Foundation’s viewpoint. And while we hope these stories encourage you, they are not meant to replace medical advice—please follow the guidance of your healthcare professional.
It's Not a Sprint
Charmagne shares their journey after her husband David’s unexpected diagnosis of folliculotropic mycosis fungoides, a rare form of cutaneous lymphoma. What began with creams and light therapy quickly became a long, evolving marathon of treatments each bringing new challenges and new hope. Through years of setbacks, learning, and perseverance, they found strength in trusted clinicians, supportive communities, and in one another.