Primary cutaneous CD30+ lymphoproliferative disorders, like lymphomatoid papulosis (LyP) and PC anaplastic large cell lymphoma (PCALCL), affect everyone differently, and each journey is uniquely personal. In this collection, people share their stories—offering honesty, hope, and connection, and reminding us that while these conditions can be complex, the human experience behind them is universal.
Just a reminder that personal experiences are unique and don’t always reflect the Foundation’s viewpoint. And while we hope these stories encourage you, they are not meant to replace medical advice—please follow the guidance of your healthcare professional.
My LyP Story
Nikki's life was transformed in many ways since she was diagnosed with lymphomatoid papulosis (LyP) many years ago, and the changes have all been positive. These include increased self-confidence, new friendships, and fulfillment from helping others – all due to life’s unexpected twists and turns after acquiring a rare disease.