Stories of Help and Hope

Everyone’s journey is different, but each story helps us understand what it’s really like to face a diagnosis and live with cutaneous lymphoma and its treatments. We offer these stories in the storytellers' own words to help build empathy, offer support, and as a reminder that no one is alone. The stories here show the strength, challenges, and hope that people experience along the way.

Just a reminder that personal experiences are unique and don’t always reflect the Foundation’s viewpoint. And while we hope these stories encourage you, they are not meant to replace medical advice—please follow the guidance of your healthcare professional.

Cutaneous Lymphoma Stories

Each person’s cutaneous lymphoma journey is unique, yet every story offers a window into the challenges, strength, and hope that come with diagnosis and treatment. Shared in the storytellers’ own words, these experiences build empathy, offer support, and remind us that no one faces this path alone.

Mycosis Fungoides Stories

Each person’s cutaneous lymphoma journey is unique, yet every story offers a window into the challenges, strength, and hope that come with diagnosis and treatment. Shared in the storytellers’ own words, these experiences build empathy, offer support, and remind us that no one faces this path alone.

Sezary Syndrome Stories

Each person’s cutaneous lymphoma journey is unique, yet every story offers a window into the challenges, strength, and hope that come with diagnosis and treatment. Shared in the storytellers’ own words, these experiences build empathy, offer support, and remind us that no one faces this path alone.

CD30+ Stories

Each person’s cutaneous lymphoma journey is unique, yet every story offers a window into the challenges, strength, and hope that come with diagnosis and treatment. Shared in the storytellers’ own words, these experiences build empathy, offer support, and remind us that no one faces this path alone.

Folliculotropic MF Stories

Each person’s cutaneous lymphoma journey is unique, yet every story offers a window into the challenges, strength, and hope that come with diagnosis and treatment. Shared in the storytellers’ own words, these experiences build empathy, offer support, and remind us that no one faces this path alone.

Care Partner Stories

Every care partner’s journey is unique, yet each story reveals the compassion, resilience, and courage it takes to support someone with cutaneous lymphoma. Shared in their own words, these experiences offer insight, connection, and a reminder that care partners are never alone.