Patient Resources

Community & Educational Resources

The Cutaneous Lymphoma Foundation offers a variety of educational resources through live events, free publications, and expert articles and videos. We also help create a cutaneous lymphoma community through sharing personal stories of help and hope and our patient networking groups.

Answers from the Experts

DO I NEED TO SEE A SPECIALIST?
If a treatment center that has cutaneous lymphoma specialists isn't located nearby, what are your options? How important is it to see a specialist? Cutaneous lymphoma experts provide answers to the question: "Should I visit a specialty center and what if there isn't a specialty center close to me?"
Answers from the Experts

DO I NEED TO SEE AN ONCOLOGIST, DERMATOLOGIST OR BOTH?
Cutaneous lymphoma affects white blood cells that live in the skin, so do you need to see a dermatologist or oncologist or both? Our cutaneous lymphoma experts provide answers to the question: "When should I see a oncologist vs. dermatologist?"
Answers from the Experts

Why do treatments take such a long time?
Starting a treatment plan is a very hopeful time. However your response may not be immediate. Why? Cutaneous lymphoma experts provide answers to the question: "Why do treatments take such a long time? If I choose an aggressive treatment would I get better quicker?"
Patient Resources

2017 2-Day Patient Conference - Manhattan Beach, CA
Video recordings and available presentation slides from the 2017 2-Day Patient Conference - Memphis Beach, CA
Patient Resources

CUTANEOUS LYMPHOMA FOUNDATION FORUM Newsletter
The Cutaneous Lymphoma Foundation publishes a printed newsletter, Forum, which provides relevant, timely cutaneous lymphoma news, information and resources. The most recent issues of the Forum are available to download or read online.
Patient Resources

Networking Groups
Meeting others who are affected by cutaneous lymphoma in person can be an important part of building a support network. The Cutaneous Lymphoma Foundation has networking groups to meet that need.
Patient Resources

2017 Patient Educational Forum - Memphis, TN
Video recordings and available presentation slides from the 2017 Patient Educational Forum in Memphis, TN
Patient Resources

CUTANEOUS LYMPHOMA OVERVIEW

2016 2-Day Patient Conference in New York, NY
Expert Presenter: Ellen Kim, MD, Perelman School of Medicine at the University of Pennsylvania

Dr. Ellen Kim provides an overview of cutaneous lymphomas, addressing common questions concerning:
- Non-Hodgkins Lymphoma
- Blood involvement
- Importance of knowing your subtype
- Why it takes so long to be diagnosed
- Value of multidisciplinary approach to care
- Cause of disease
- General principles of treatment
- Relationship between the clinical and pathology in diagnosis
- Multiple biopsies
Patient Resources

2016 2-Day Patient Conference - New York
Video recordings of the 2-Day Patient Conference held in New York, NY in conjunction with the 3rd World Congress of Cutaneous Lymphomas.
Patient Resources

2016 2-Day Patient Conference - Chicago
Video recordings and available presentation slides from the 2016 2-Day Patient Conference in Chicago, Illinois.
Patient Resources

NODE PATHOLOGY AND FLOW CYTOMETRY
2016 Patient Educational Forum - Los Angeles, CA
Expert Presenter: Sherif Rezk, MD, US Irvine Medical Center

Overview of node pathology and flow cytometry in diagnosing cutaneous lymphoma.
Presentation Slides Available