Needs Assessment 2026

Help guide the Foundation’s next 3–5 years with your voice

The Cutaneous Lymphoma Foundation exists to support, empower, and connect everyone affected by cutaneous lymphoma — including people living with cutaneous lymphoma*, families, healthcare providers, researchers, industry partners, and alliance organizations.

The cutaneous lymphoma landscape is changing — and so are the needs of the people and professionals we serve.

As treatments evolve, awareness grows, and the community’s expectations shift, the Foundation must also evolve. And we can only do that effectively if we understand how our programs, services, and resources are meeting your needs — and where we must do better.

That’s why, as we shape our next Strategic Plan, we are doing something essential:

We are listening directly to the people and partners we serve.

When you take this Needs Assessment, you’re helping determine how the Foundation can best serve you and the broader community in the years ahead. 


*We invite responses from individuals aged 18 and older who are living with cutaneous lymphoma. For those under 18, a parent or guardian may respond on their behalf.

Take the Survey
This Foundation exists for you — and grows with your guidance

Thank you for sharing your perspective.

Thank you for shaping our future.

Thank you for helping us ensure that every person and professional affected by cutaneous lymphoma receives the support, connection, and information they deserve.