Newly Diagnosed

Receiving a cutaneous lymphoma diagnosis can be overwhelming. Learning about the disease, how it's diagnosed, staged and treated can help to reduce anxiety when you're newly diagnosed. Being well-informed can empower you to live successfully with this rare disease.

EARLY STAGE DISEASE Q&A

A question and answer session related to early stage cutaneous lymphoma. Question topics include:
-How do I know my stage? Will my stage change?
-What prompts a skin biopsy?
-Why does it take so long to diagnose?
-What is proper skin care?
-Do patches and plaques present themselves differently?
-Does the disease always need to be treated with early-stage?
-Is it common to feel "uncomfortable" and "lethargic"?
-How does the relationship between the clinical and pathology effect diagnosis?

Recorded at the 2017 2-Day Patient Conference in New York, NY.

OBTAINING A PROPER CUTANEOUS LYMPHOMA DIAGNOSIS

Uncommon diseases pose a number of challenges, one of which is the difficulty patients and physicians face in reaching a proper diagnosis. A definitive diagnosis will help inform treatment decisions and potentially yield better patient-related outcomes over time.
FROM GUIDE CONTRIBUTORS

Staging Cutaneous T-cell Lymphoma

Staging describes how much of the body is affected by cutaneous lymphoma and where. Identifying your stage is important in determining appropriate treatment.

IMPORTANT QUESTIONS TO ASK

Becoming informed when diagnosed with cutaneous lymphoma is important, but knowing what questions to ask your physician can be a challenge. Our clinical experts provide their recommendations.

DO I NEED TO SEE A SPECIALIST?

If a treatment center that has cutaneous lymphoma specialists isn't located nearby, what are your options? How important is it to see a specialist? Cutaneous lymphoma experts provide answers to the question: "Should I visit a specialty center and what if there isn't a specialty center close to me?"

DO I NEED TO SEE AN ONCOLOGIST, DERMATOLOGIST OR BOTH?

Cutaneous lymphoma affects white blood cells that live in the skin, so do you need to see a dermatologist or oncologist or both? Our cutaneous lymphoma experts provide answers to the question: "When should I see a oncologist vs. dermatologist?"
Finding Support

Finding Support

Cutaneous lymphoma will present you with challenges. But, try to remember that you do not have to cope with your illness alone.

Cutaneous lymphoma 101

Knowing where to start when you learn you have cutaneous lymphoma can be a challenge. Cutaneous lymphoma specialist Dr. Stuart Lessin provides an overview of the important information and concepts every patient with cutaneous lymphoma and caregivers should know.

GETTING A SECOND OPINION

When is getting a second opinion a good decision? Our panel of experts offer their recommendations on when you should seek out another professional opinion.
Health care team
FROM GUIDE CONTRIBUTORS

Working With Your Healthcare Team

The best way to manage a disease like cutaneous lymphoma is by assembling the right team of physicians and support individuals to guide your treatment course and help you through each stage of the journey.