Board member since 2025

There is no greater service than that rendered for the “least of these”. The ability to advocate and lift up those who experience the effects of rare diseases is a legacy that is absolutely worth every second of time and every ounce of energy I can expend. I look forward to joining this esteemed group of dedicated volunteers and professionals.

Robert was moving from Germany to Shanghai, China as an expatriate when he was diagnosed with CTCL (mycosis fungoides) in 2000. Since then, he has been treated with PUVA, narrow band UVB, and a host of topical treatments by excellent doctors across the country. He is bringing decades of work in non-profit and volunteer organizations and an eclectic educational background in pharmacy, theology, and education to the task of helping the CL Foundation reach even greater heights of service to patients, physicians, and researchers across the globe.

Overcoming the challenges we are facing in the quest for a better understanding of the diagnosis, staging, and treatment of cutaneous lymphomas will require even more critical thinking, collaboration, and decision making from a wide variety stakeholders. Helping to bring together the people and resources necessary for this task is the primary goal of Robert’s service on the Board.

Robert’s family includes his wife of nearly 40 years, three adult children, his first grandchild, and two needy, but loving cats. He enjoys volunteering at the local unhoused ministry, watching movies, playing video games, reading (non-fiction), collecting trading cards, and is a passionate fan of men’s and women’s basketball.