Cutaneous Lymphoma Foundation Announces Inaugural Quality of Life Workshop

The Cutaneous Lymphoma Foundation will host its first-ever Quality of Life (QoL) Workshop in November 2026, bringing together patients and care partners, clinicians, researchers, global organizations, and industry partners to advance quality-of-life outcomes for people living with cutaneous lymphoma.

Unlike a traditional scientific conference, the QoL Workshop is designed as a working meeting focused on action, collaboration, and measurable outcomes. Participants will work collaboratively to identify priorities, standardize QoL measurement, and create a shared roadmap for improving patient care and everyday well-being.

For many patients, cutaneous lymphoma impacts far more than physical health, often causing itch, pain, fatigue, sleep disruption, emotional stress, financial burden, and fear of disease progression. While quality-of-life tools and research exist, their use is often inconsistent across care settings.

As a pilot initiative, the symposium marks the launch of a long-term collaboration led by the Cutaneous Lymphoma Foundation to standardize quality-of-life measurement, address gaps in care, promote health equity, and ensure that patient experiences remain at the center of research and treatment decisions.