Other Supported Research

Research Discovers CTCL Incidence Rising in United States

The Cutaneous Lymphoma Foundation funded an important epidemiology study that shows that the number of new cases of CTCL has doubled. In this study, Drs. Vincent Criscione and Martin Weinstock of Brown University report that there are approximately 1,600 new cases of CTCL diagnosed each year in the United States. This represents over double the number of new cases in the past fifteen years.

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Groundbreaking Quality of Life Research Study

Dr. Marie-France Demierre of Boston University School of Medicine, Director of Skin Oncology, collaborated with the Cutaneous Lymphoma Foundation on an extremely important study, that of our patients’ health-related quality of life. Health-related quality of life is a multidimensional term that includes the physical, functional, psychological, social health, and well-being of the individual.

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Epidemiology Characterization Synonyms CTCL

BACKGROUND: The familial occurrence of mycosis fungoides (MF) has been reported only in 8 families. Recently, the HLA class II alleles DRB1* 11 and DQB1* 03 have been found to be significantly increased for patients with sporadic MF, suggesting a possible immunogenetic basis for the pathogenesis of this malignancy.
 
OBJECTIVE: We sought to detect familial occurrences of MF, to describe familial features, and to investigate the possible association or linkage with the HLA system in such cases.

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