Staff since 2004

Holly Priebe serves as Co-CEO of the Cutaneous Lymphoma Foundation and has been part of this community since 2004. Her passion for the Foundation’s mission began years earlier when a close friend’s mother was diagnosed with cutaneous lymphoma in 1991—a connection that shaped her commitment to ensuring every person impacted by this rare disease is seen, heard, and supported.

With more than 20 years of experience in nonprofit and business operations, program development, marketing, and finance, Holly brings both strategic vision and a heart for people to her leadership. Before stepping into her current role, she served as the Foundation’s Chief Operating and Financial Officer, helping build programs that empower patients and care partners and strengthen the organization for the future. Holly proudly represents the patient voice at major medical meetings and advocates in Washington, D.C., while also working with global partners like GlobalSkin, Lymphoma Coalition, and ICCL to improve quality of life worldwide.

Holly studied Business Marketing Management at Oakland Community College and Accounting at Baker College Online. She also serves as President of the Coalition of Skin Diseases and has held leadership roles in education and community organizations.

Outside of work, Holly loves the outdoors—whether hiking, sailing, or simply being near water. Her family is her greatest joy, and although she has lived across the United States, she always comes home to Michigan.