Navigating My Diagnosis

When you've been diagnosed with a rare disease like cutaneous lymphoma, it can be difficult to digest all the information you may need to know. We've provided a wealth of information to help you navigate to your best life while living with cutaneous lymphoma.

OBTAINING A PROPER CUTANEOUS LYMPHOMA DIAGNOSIS

Uncommon diseases pose a number of challenges, one of which is the difficulty patients and physicians face in reaching a proper diagnosis. A definitive diagnosis will help inform treatment decisions and potentially yield better patient-related outcomes over time.
FROM GUIDE CONTRIBUTORS

Staging Cutaneous T-cell Lymphoma

Staging describes how much of the body is affected by cutaneous lymphoma and where. Identifying your stage is important in determining appropriate treatment.

IMPORTANT QUESTIONS TO ASK

Becoming informed when diagnosed with cutaneous lymphoma is important, but knowing what questions to ask your physician can be a challenge. Our clinical experts provide their recommendations.

THERAPY SIDE EFFECTS

Cutaneous lymphoma experts provide answers to the question: "What are the common side effects for the therapies?"

DO I NEED TO SEE A SPECIALIST?

If a treatment center that has cutaneous lymphoma specialists isn't located nearby, what are your options? How important is it to see a specialist? Cutaneous lymphoma experts provide answers to the question: "Should I visit a specialty center and what if there isn't a specialty center close to me?"

DO I NEED TO SEE AN ONCOLOGIST, DERMATOLOGIST OR BOTH?

Cutaneous lymphoma affects white blood cells that live in the skin, so do you need to see a dermatologist or oncologist or both? Our cutaneous lymphoma experts provide answers to the question: "When should I see a oncologist vs. dermatologist?"

Why do treatments take such a long time?

Starting a treatment plan is a very hopeful time. However your response may not be immediate. Why? Cutaneous lymphoma experts provide answers to the question: "Why do treatments take such a long time? If I choose an aggressive treatment would I get better quicker?"
Finding Support

Finding Support

Cutaneous lymphoma will present you with challenges. But, try to remember that you do not have to cope with your illness alone.

Cutaneous lymphoma 101

Knowing where to start when you learn you have cutaneous lymphoma can be a challenge. Cutaneous lymphoma specialist Dr. Stuart Lessin provides an overview of the important information and concepts every patient with cutaneous lymphoma and caregivers should know.

Should I get vaccinations like the flu shot or shingles?

What are recommendations about vaccinations like shingles and flu shots? Our clinical experts provide clear answers.