Emotional

Having someone, or a group of “someone’s”, who understands how chronic cancer impacts life is an important part of managing feelings associated with a diagnosis of cutaneous lymphoma. The resources in this section offer options for connecting with people, groups and organizations who will listen, understand and offer support.

CancerCare

CancerCare helps individuals and families better cope with and manage the emotional and practical challenges arising from cancer. Our services–for patients, survivors, loved ones, caregivers, and the bereaved–include counseling and support groups, educational publications and workshops, and financial assistance. All of our services are provided by professional oncology social workers and are offered completely free of charge. To speak directly with a CancerCare social worker, call 1.800.813.HOPE (4673).
Finding Support

Finding Support

Cutaneous lymphoma will present you with challenges. But, try to remember that you do not have to cope with your illness alone.
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FROM GUIDE CONTRIBUTORS

The Impact of Skin Changes

Cutaneous lymphoma is a disease that can change the way you look. This may affect your life in physical, practical and emotional ways.

Online Support Groups

Online support communities such as listservs can directly link people living with cutaneous lymphoma to one another via email. The Cutaneous Lymphoma Foundation is pleased to promote the following listservs.

Cancer Support Community

The Cancer Support Community (CSC) is an international nonprofit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest quality cancer support to the millions of people touched by cancer. These support services are available through a network of professionally-led community-based centers, hospitals, community oncology practices and online, so that no one has to face cancer alone. For more information, visit their website or contact 888.793.9355.

Cancer Hope Network

Cancer Hope Network is a nonprofit organization that provides confidential one-on-one support to cancer patients and their families. They provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience. For more information, call 877.HOPENET (552.4366) or visit www.cancerhopenetwork.org.

CarePages

CarePages are free, personal, private web pages that help family and friends communicate when someone is receiving care. CarePages has partnered with Lotsa Helping Hands to provide friends, family, colleagues and neighbors with a system for coordinating their efforts to assist loved ones in need. For more information, visit their website or call 888.852.5521.

Caring Voices Coalition

Caring Voice Coalition is dedicated to improving the lives of patients with chronic illnesses. Our organization continues to accomplish its mission by offering outreach services that provide financial, emotional and educational support. Specific support areas include financial assistance, insurance coverage, therapy appeals, social security disability and patient education on available services. For more information, visit their website or call 888.267.1440.

Cancer Survivors Network

The American Cancer Society created the Cancer Survivors Network, an online community of cancer survivors, families and friends. The mission of the program is to provide a “private, secure way to find and communicate with others who share your interests and experiences” and ultimately for participants to share their experiences, strengths and hopes.

Chemo Angels

Chemo Angels is a volunteer organization dedicated to supporting people undergoing IV chemotherapy treatment for cancer. In addition to providing information and cancer-related resources, the organization matches patients who are going through the difficult time of chemotherapy with “Angels.” Many of the Chemo Angels volunteers are cancer survivors themselves or people whose lives have been affected by cancer in some way. The function of these Angels is to bring a bit of cheer and encouragement through gestures such as notes, cards and small gifts.