Cutaneous Lymphoma Foundation
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What is cutaneous lymphoma?
Cutaneous lymphoma is a general term for many lymphomas of the skin including:

  • cutaneous T-cell lymphoma
  • mycosis fungoides
  • Sézary syndrome
  • cutaneous anaplastic large cell lymphoma
  • adult T-cell leukemia/lymphoma
  • peripheral T-cell lymphoma
  • lymphomatoid granulomatosis
  • granulomatous slack skin disease
  • B-cell lymphoma
  • pagetoid reticulosis
  • and more read more...

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Want to get the latest updates on advocacy and research? We send out periodic updates via email, and do not share your email address. Join here

FREE Educational Materials Available
The Cutaneous Lymphoma Foundation has several educational materials available. read more...
Picture of Cutaneous Lymphoma Foundations Publications: Click here for more information

National Comprehensive Cancer Network (NCCN) Practice guidelines in Oncology for Mycosis Fungoides/Sezary Syndrome
Here is the link to download the document (MF/SS guidelines are on pages 62-70)

In the News
August 23, 2008: Polka Dot Jersey Challenge: Providing Ispiration

June 26, 2008: FDA Files Application To Convert ONTAK(R) (Denileukin Diftitox) to Full Approval for Use in Cutaneous T-Cell Lymphoma (CTCL)

June 6, 2008: Allos Therapeutics Announces Interim Data From Phase 1 Study of PDX In Patients With Relapsed Or Refractory Cutaneous T-Cell Lymphoma

June 5, 2008: Allos Therapeutics Announces Interim Data from Phase 1 Study of PDX in Patients with Relapsed or Refractory Cutaneous T-Cell Lymphoma (PDF)

March 4, 2008: Potential Marker for Cutaneous T-Cell Lymphoma ID'd

December 5, 2007:Gloucester Pharmaceuticals Announces Presentation of Romidepsin

December 5, 2007: Novartis Plans for New Cancer Drugs

November 26, 2007: CuraGen and TopoTarget Announce Presentations on Belinostat at the Upcoming American Society of Hematology 49th Annual Meeting

November 26, 2007: Marketing Application for Vorinostat Filed in Europe for the Treatment of Advanced, Refractory Cutaneous T-Cell Lymphoma

October 13, 2007: BioCryst Initiates Enrollment In Pivotal Trial Of Forodesine HCL In Patients With Cutaneous T-Cell Lymphoma (CTCL)

October 11, 2007: Genmab Amends HUMAX-CD4 Pivotal Study in CTCL: Receives Orphan Drug Designation for Nodal T-cell Lymphoma

July, 2007: The National Comprehensive Cancer Network Practice guidelines in Oncology for Mycosis Fungoides/Sezary Syndrome have just come out. Here is the link to download the document (MF/SS guidelines are on pages 58-63)

July 17, 2007: Cutaneous T-Cell Lymphoma Grows More Common

The most reliable, up-to-date information about cancer is available in Spanish! The National Cancer Institute (NCI) is pleased to announce the launch of a new Spanish Web site, Cancer.gov en español. Information about mycosis fungoides and Sezary syndrome is available en español here. (This link will open in a new window.)

Cutaneous Lymphoma Foundation Bike Jerseys
CLF bike jerseyShow your support with these custom bike jerseys!

 

Cutaneous Lymphoma Patient
Educational Forums
MinneapolisMinneapolis, Minnesota: October 18, 2008
Lymphoma Workshop , presented in collaboration with the Lymphoma Research Foundation
Registration now open!
PittsburghPittsburgh, Pennsylvania: October 25, 2008
11th Annual Brian V. Jegasothy Support Group for CTCL, presented in partnership with the University of Pittsburgh Medical Center
Registration now open!
Brooklyn, NYBrooklyn, New York: November 8, 2008
Lymphoma Workshop , presented in collaboration with the Lymphoma Research Foundation
Registration now open!
Washington, DCBethesda, MD : November 15, 2008
Cutaneous Lymphoma Patient Educational Forum, presented in collaboration with The Leukemia Lymphoma Society
Registration now open!
Did you miss a Cutaneous Lymphoma Patient Educational Forum? Many of the presentations from past events are available here.

Cutaneous Lymphoma Foundation Welcomes New Executive Director
Gary H. RossThe Cutaneous Lymphoma Foundation welcomed its new executive director, Gary H. Ross, on January 1, 2008. Judy Jones, Cofounder and previous Executive Director, has moved into the position of Board President, and will continue to be active with the organization that she helped to form ten years ago. read more...

Cutaneous T-Cell Lymphoma Financial Assistance Program from Patient Services Incorporated

The PSI CTCL Co-pay assistance program is designed to help those eligible afford the cost of their expensive prescription medication (oral and topical). To apply for CTCL financial assistance, please call a PSI Customer Service Representative toll free at (800) 366-7741.

Medicare Formulary Finder for Prescription Drug Plans
The Formulary Finder for Prescription Drug Plans will allow you to find plans in your state that match your required drug list. Click here to visit the Formulary Finder for Prescription Drug Plans on medicare.gov.

What happened to the Mycosis Fungoides Foundation? Read the press release...

 

   
 

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Cutaneous Lymphoma Foundation • PO Box 374, Birmingham, MI 48012 • (248) 644-9014

The Cutaneous Lymphoma Foundation is an Organizational Member of the Coalition of Skin Diseases

 

 

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