Other Resources

Rare disease impact more than just the individual with the diagnosis. The needs of the individual and their family frequently go beyond diagnosis and treatment. 

Triage Health

Triage Health

Triage Health, a program of Triage Cancer, provides free education on the legal and practical issues related to navigating a chronic or serious medical condition.

Triage Health has extensive free resources for individuals diagnosed with a chronic or serious medical condition, caregivers, and health care professionals, on the legal and practical issues that may arise after a diagnosis. Free animated videos, Quick Guides & Checklists, state laws, and other resources that may be helpful are available on their website. Their free resources are applicable to anyone with a serious medical condition, or the general public.

PACT Act and Your VA Benefits

The PACT Act has expanded VA health care and benefits for Veterans exposed to burn pits, Agent Orange, and other toxic substances. It adds to the list of health conditions assumed (or “presumed”) to be caused by exposure to these substances. This VA website can help answer your questions about what the PACT Act means for you or your loved ones. You can also call the VA at 800-698-2411 (TTY: 711). It also provides a link to file a claim for PACT Act-related disability compensation or apply for VA health care.

Triage Cancer - PACT Act

Triage Cancer provides information on how the PACT Act may help you if your are a veteran. The PACT Act is a new law that expands health care and other benefits for Veterans exposed to burn pits and other toxic substances while serving in the military. 

Triage Cancer

Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis. 

Information related to Veterans Benefits and Cutaneous Lymphoma

In 1991, Congress passed the Agent Orange Act, directing the Veteran’s Administration (VA) to presume that specific disease , including non-Hodgkin's lymphoma, could be tied to chemical exposure related to a soldier’s service in Vietnam. Learn more about what to do if your VA benefits have been denied.

Healing Odyssey

Healing Odyssey is a nonprofit organization providing recovery and cancer support programs for women cancer survivors. Their programs offer the practical tools, skills-building and support needed to cope effectively with the life-altering effects of a cancer diagnosis and treatment. For more information, visit their website or call 949.951.3930.

Stowe Weekend of Hope

The Stowe Weekend of Hope, through a partnership of Vermont’s medical community and Stowe’s hospitality businesses, offers an educational and inspirational retreat weekend for cancer survivors and their families. Through the various activities and educational offerings, cancer survivors and their families are given an opportunity to gather with members of the medical community and with others in order to further their understanding of the disease affecting their lives. The goal of the Stowe Weekend of Hope is to provide this enriching experience without the financial burden. Each year, Stowe lodge/hotel owners donate hundreds of free rooms to cancer survivors and their loved ones, so the lodging and retreat are free (attendees incur meal expenses only). For more information, call 800.GO.STOWE (467.8693) or visit their website.

CancerCare Co-Payment Assistance Foundation

The CancerCare Co-Pay Assistance Foundation is a nonprofit organization established in 2007 to address the needs of individuals who cannot afford their insurance co-payments to cover the cost of medications for treating cancer.

AADA Prior Authorization Patient Resources

The American Academy of Dermatology Association (AADA) have created resources designed to help patients navigate prior authorization, drug pricing, and step therapy issues. The resources include:
- Fact sheet on reducing drug costs
- Key terms and concepts
- Prior authorization contacts for individual insurers
- Overview on drug pricing

BenefitsCheckUp

BenefitsCheckUp is a free service of the National Council on Aging, a nonprofit service and advocacy organization in Washington, DC. Many adults over 55 need help paying for prescription drugs, health care, utilities, and other basic needs. There are over 2,000 federal, state and private benefits programs available to help. But many people don’t know these programs exist or how they can apply. BenefitsCheckUp asks a series of questions to help identify benefits that could save money and cover the costs of everyday expenses. For more information, call 202.479.1200 or visit their website.

Cancer Insurance Checklist - In Spanish

The Cancer Insurance Checklist is designed to help you when shopping for insurance on your state’s Health Insurance Marketplace/Exchange if you have cancer, a history of cancer, or are at risk for cancer. Use the Checklist to compare insurance plans and compare costs in order to choose the plan that's best for you.

Cancer Insurance Checklist

The Cancer Insurance Checklist is designed to help you when shopping for insurance on your state’s Health Insurance Marketplace/Exchange if you have cancer, a history of cancer, or are at risk for cancer. Use the Checklist to compare insurance plans and compare costs in order to choose the plan that's best for you.

VAWatchdog - Veterans Assistance

The primary goal of VAWatchdog is to educate veterans. It's our philosophy that a veteran should understand the reality of what he or she faces when dealing with the Department of Veterans Affairs and other, similar agencies.

US Department of Veterans Affairs

Eligible veterans and their dependents may receive cancer treatment at a Veterans Administration Medical Center. For more information, visit their website or call 877.222.8387.