Resources

Insurance and Benefits Assistance

AADA Prior Authorization Patient Resources

The following resources were designed to help patients navigate prior authorization, drug pricing, and step therapy issues. - See more at: https://www.aad.org/practicecenter/managing-a-practice/prior-authorization-assistance/prior-authorization-patient-resources#sthash.zCGtIr5M.dpuf

The American Academy of Dermatology Association (AADA) have created resources designed to help patients navigate prior authorization, drug pricing, and step therapy issues. The resources include:

  • Fact sheet on reducing drug costs
  • Key terms and concepts
  • Prior authorization contacts for individual insurers
  • Overview on drug pricing

For more information vist: www.aad.org/practicecenter/managing-a-practice/prior-authorization-assistance/prior-authorization-patient-resources#sthash.zCGtIr5M.dpuf


BenefitsCheckUp

BenefitsCheckUp is a free service of the National Council on Aging, a nonprofit service and advocacy organization in Washington, DC. Many adults over 55 need help paying for prescription drugs, health care, utilities, and other basic needs. There are over 2,000 federal, state and private benefits programs available to help. But many people don’t know these programs exist or how they can apply. BenefitsCheckUp asks a series of questions to help identify benefits that could save money and cover the costs of everyday expenses. For more information, call 202.479.1200 or visit www.benefitscheckup.org.


Cancer Insurance Checklist

The Cancer Insurance Checklist is designed to help you when shopping for insurance on your state’s Health Insurance Marketplace/Exchange if you have cancer, a history of cancer, or are at risk for cancer. Use the Checklist to compare insurance plans and compare costs in order to choose the plan that's best for you. Visit www.cancerinsurancechecklist.org, or in Spanish, visit http://www.cancerinsurancechecklist.org/es/.


Caring Voices Coalition

Caring Voice Coalition is dedicated to improving the lives of patients with chronic illnesses. Our organization continues to accomplish its mission by offering outreach services that provide financial, emotional and educational support. Specific support areas include financial assistance, insurance coverage, therapy appeals, social security disability and patient education on available services.

For more information, visit www.caringvoice.org or call 888.267.1440.


Department of Veterans Affairs

Eligible veterans and their dependents may receive cancer treatment at a Veterans Administration Medical Center. For more information, visit www.va.gov or call 877.222.8387.

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Information related to VA Benefits and Cutaneous Lymphoma:

In 1991, Congress passed the Agent Orange Act, directing the Veteran’s Administration (VA) to presume that specific disease could be tied to chemical exposure related to a soldier’s service in Vietnam.
 
Agent Orange Act of 1991 - Presumes the following diseases to be service-connected and resulting from exposure to dioxins and other herbicide agents during service in Vietnam during the Vietnam era unless there is affirmative evidence to the contrary: (1) non-Hodgkins lymphoma, each soft-tissue sarcoma (with certain exceptions), and chloracne or other consistent acneform diseases becoming manifest to a degree of disability of ten percent or more; and (2) those additional diseases that the Secretary determines warrant such a presumption by reason of having a positive association with a herbicide agent, if they become manifest within the appropriate period. 
 
Veterans who have been diagnosed with cutaneous lymphoma and have had their benefits challenged by the VA, may be asked to have their physician produce a nexus letter. A "nexus letter" is a document prepared for a claimant by a medical professional that explicitly connects an in-service event to the current medical condition for which a claimant is seeking compensation.
 
It’s recommended to have the nexus letter state that veteran has a “NON HODGKINS LYMPHOMA” rather than the specific diagnosis, for example mycosis fungoides. Claims with specific diagnosis have been denied as the term “mycosis fungoides” is not listed on the VA list of illness related to participation in the Vietnam War but Non Hodgkins Lymphoma is.
 
Additionally, veterans need to show that they were deployed to Vietnam during the war.
 
For more information on veterans issues:
VAWatchdog.org - The primary goal of VAWatchdog is to educate veterans. It's our philosophy that a veteran should understand the reality of what he or she faces when dealing with the Department of Veterans Affairs and other, similar agencies.

Medicaid

Medicaid is a program supported by both federal and state funds in the U.S. and it is administered on the state level, meaning that eligibility guidelines and benefits available may differ considerably between states. Medicaid is intended to help individuals and families pay their medical expenses and eligibility is primarily based on income although certain factors such as age or disability may be considered. For more information including contact information for your local Medicaid office, visit www.medicaid.gov.


Medicare

Medicare is a program supported by the U.S. federal government that provides health insurance for people over 65 years of age or people under 65 years of age with certain disabilities. For more information, visit www.medicare.gov.


State Health Insurance Assistance Program

The State Health Insurance Assistance Program (SHIP) is a national program that offers one-on-one counseling and assistance to people with Medicare and their families. Through federal grants directed to states, SHIP provides free counseling and assistance via telephone and face-to-face interactive sessions, public education presentations and programs, and media activities. For more information, visit www.shiptalk.org.


Triage Cancer

Triage Cancer helps survivors, caregivers, health care professionals, and advocates to navigate cancer survivorship though educational events, a national Speakers Bureau, and online tools and resources. For more informations, visit triagecancer.org.

Available Triage Cancer resources of interest:

Financial Big Picture Spreadsheet: This customizable document is designed to help people collect all of the relevant information about their financial status.

A comprehensive resource directory for financial assistance programs.

Making Sense of the Medicare Maze - recorded webinar

A new Quick Guide on Reasonable Accommodations that provides information about what they are, examples, and tips on how to request them.

Updated information on state laws around employer's ability to conduct credit checks on their employees, and states with oral chemotherapy parity laws.

Links to search for legislation in each state.

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Cutaneous Lymphoma Foundation is not responsible
for any potential translation inaccuracies.