Are you experiencing challenges with your personal journey with cutaneous lymphoma and do you want to make your voice heard by expressing your thoughts to your elected officials? Do you simply want to bring awareness to cutaneous lymphoma by sharing your story and information about this disease?
The Cutaneous Lymphoma Foundation invites you to become empowered and utilize a variety of advocacy resources provided here that can help you garner attention and support for the issues that are most important to you and the cutaneous lymphoma community. Following are some helpful resources:
How to Contact Your Elected Officials - Learn how to get in touch with your federal, state, and local elected leaders.
Advocacy Guide - Lymphoma Research Foundation guide on how to be an effective advocate*.
*The Cutaneous Lymphoma Foundation thanks the Lymphoma Research Foundation for providing access to its Advocacy Guide.
Legislative Tracker - The Rare Action Network offers a monthly legislative tracker to subscribers with updates on the bills that are important to improving the lives of people and families in the rare disease community. The Rare Action Network is powered by the National Organization for Rare Disorders (NORD).
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