Navigating My Diagnosis

Newly Diagnosed

Receiving a cutaneous lymphoma diagnosis can be overwhelming. Learning about the disease, how it's diagnosed, staged and treated can help to reduce anxiety when you're newly diagnosed. Being well-informed can empower you to live successfully with this rare disease.

Navigating My Disease

Which Type of Doctor Should I See and When?
Being diagnosed with cutaneous lymphoma can be a difficult time. Determining which physician (dermatologist, oncologist or hematologist) to work with can be confusing. Dr. Laura McGirt provides guidelines for choosing.
Navigating My Disease

OBTAINING A PROPER CUTANEOUS LYMPHOMA DIAGNOSIS
Uncommon diseases pose a number of challenges, including difficulty getting an accurate diagnosis. A definitive diagnosis will help inform treatment decisions and potentially yield better patient-related outcomes over time.
Answers from the Experts

Cutaneous lymphoma 101
Knowing where to start when you learn you have cutaneous lymphoma can be a challenge. Cutaneous lymphoma specialist Dr. Stuart Lessin provides an overview of the important information and concepts every patient with cutaneous lymphoma and caregivers should know.

Basics of Cutaneous Lymphoma - International Conference Recordings
The "Basics of Cutaneous Lymphoma" provides an overview of the diagnosis and treatment of the disease in a video format in English, Dutch, French and Italian languages. Presentations are also provided with captions in Dutch, French, German and Spanish. All of the presentations were originally given at the 2022 International Patient Conference.

Overview of Cutaneous Lymphomas Including Diagnosis & Staging
September 2020 - A discussion covering the topics of the immune system and how it relates to cutaneous lymphoma, how cutaneous lymphoma is diagnosed, and an explanation of the staging system for cutaneous lymphoma.
Navigating My Disease

Staging Cutaneous T-cell Lymphoma
Staging describes how much of the body is affected by cutaneous lymphoma and where. Identifying your stage is important in determining appropriate treatment.
Answers from the Experts

IMPORTANT QUESTIONS TO ASK
Becoming informed when diagnosed with cutaneous lymphoma is important, but knowing what questions to ask your physician can be a challenge. Our clinical experts provide their recommendations.
Physician & Patient
Patient Resources

Questions to Ask After Your Diagnosis
If you or someone close to you has been given a diagnosis of cutaneous lymphoma, you probably have many questions and concerns. You may not even be sure about what kinds of questions to ask. Having a prepared list of questions for your healthcare provider can help you get the information you need to make informed decisions.

Overview of Cutaneous Lymphomas Including Diagnosis & Staging
September 2020 - A discussion covering the topics of the immune system and how it relates to cutaneous lymphoma, how cutaneous lymphoma is diagnosed, and an explanation of the staging system for cutaneous lymphoma.