Get Involved

Get Involved

Rare Disease Day

Join us in making the voice of rare diseases heard

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Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Rare Disease Day is open to everyone!
Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities—the more people involved the better!

As you'll find out, there are many ways to participate. Let's join our efforts to give hope to rare disease patients all over the world!

Learn how you can get involved with Rare Disease Day globally.

If you live in the United States, there are many ways you can get involved in Rare Disease Day in your community:

  • Plan or participate in a State House event
  • Write your representatives to tell them why rare diseases are important to you
  • Become an individual supporter to receive updates about the day
  • Participate in the Handprints Across America project
  • Write a letter to the editor and send it to your local paper about what Rare Disease Day means to you
  • Send a proclamation request to your representatives
  • Organize an awareness display at a local school or hospital
  • Bring Rare Disease Day into a local school
  • Host an event at a local community center or library
  • Create artwork to commemorate the day and share it with us on Facebook
  • Participate in an event near you
  • Share information about Rare Disease Day on your social media sites with the #RareDiseaseDay

Learn more about Rare Disease Day U.S.

Download Rare Disease Day logo page.

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Cutaneous Lymphoma Foundation is not responsible
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