The Mycosis Fungoides Foundation Changes its Name to the Cutaneous Lymphoma Foundation
In order to better serve its mission, the Mycosis Fungoides Foundation has changed its name to the Cutaneous Lymphoma Foundation. The decision to change the name of the Foundation was made so that it more accurately describes the diseases for which it advocates.
With the new name comes a new website (www.clfoundation.org), which is packed with information for patients, caregivers, and physicians. Included are fact sheets for the newly diagnosed; opportunities for patients to find support and educational forums; Cutaneous Lymphoma Foundation publications; an extensive description of treatment options; diagnosis and treatment centers; and clinical trial listings. Also included are articles about current advocacy issues and research. Physicians will find presentations online from such meetings as the CTCL Masters Conference and the CTCL Symposium at the Society for Investigative Dermatology Meeting.
About Cutaneous Lymphomas
Cutaneous lymphomas are a group of lymphomas that primarily affect the skin at the time of diagnosis. Progression to internal involvement and prognosis is variable and dependent on the type of cutaneous lymphoma. There are approximately 2,500 new cases each year in the United States.
About the Cutaneous Lymphoma Foundation
The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care, and facilitating research. For more information about cutaneous lymphomas or the Cutaneous Lymphoma Foundation, please visit www.clfoundation.org.
To interview spokespeople or request more information, please contact:
Judy Jones, Executive Director
(248) 644-9014 or send us an email
You may download a copy of the press release and background information here. You may open this file with Adobe Acrobat Reader. If you do not have Adobe Acrobat Reader, you may download if for free here.
