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A Patient’s Guide to Understanding Cutaneous Lymphoma A Patient’s Guide to Understanding Cutaneous Lymphoma

This guide is a comprehensive educational publication with in-depth information about cutaneous lymphoma and its many forms; treatment options and side effects; working with the right healthcare team; skin care and itch symptom management; living with cutaneous lymphoma; patient assistance programs; research and clinical trials; Cutaneous Lymphoma Foundation programs, resources and support; and much  more.

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CTCL-MF Fast Facts CTCL-MF Fast Facts

Recently diagnosed? These fast facts will answer frequently asked questions, like:

  • What is CTCL?
  • What kind of treatment can I expect?
  • Is it contagious?
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Cutaneous Lymphoma Foundation Summit Proceedings Cutaneous Lymphoma Foundation Summit Proceedings

The Foundation has published proceedings from its 2009 Cutaneous Lymphoma Summit. New “Call To Action” sets road map for future research and treatment.

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Lymphomatoid Papulosis Fast Facts Lymphomatoid Papulosis Fast Facts

Recently diagnosed with Lymphomatoid Papulosis (LyP)? These fast facts will answer frequently asked questions, like:

  • What is LyP?
  • What kind of treatment can I expect?
  • Is it contagious?
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Sézary Syndrome Fast Facts Sézary Syndrome Fast Facts

Recently diagnosed with Sézary syndrome(SS)? These fast facts will answer frequently asked questions, like:

  • What is Sézary syndrome?
  • What kind of treatment can I expect?
  • How is it diagnosed?
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Primary Cutaneous Anaplastic Large Cell Lymphoma Fast Facts Primary Cutaneous Anaplastic Large Cell Lymphoma Fast Facts

Recently diagnosed with primary cutaneous anaplastic large cell lymphoma? These fast facts will answer frequently asked questions, like:

  • What is primary cutaneous anaplastic large cell lymphoma?
  • What kind of treatment can I expect?
  • How is it diagnosed?
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Primary Cutaneous B-Cell Lymphoma Fast Facts Primary Cutaneous B-Cell Lymphoma Fast Facts

Recently diagnosed with primary cutaneous B-cell lymphoma (CBCL)? These fast facts will answer frequently asked questions, like:

  • What is CBCL?
  • What kind of treatment can I expect?
  • Is it contagious?
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Forum Winter 2012 Forum Winter 2012

In this issue:  •Cutaneous T-Cell Lymphoma: A Dermatologist’s Perspective •From the President and the Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •My Personal Journey:  Laurel Carlson •Skin-Directed Therapies •Highlights from the ASH 2011 Annual Meeting •My Personal Journey:  Joseph Eischens •Good Skin Care Tips •Coming Soon: Our New “Patient’s Guide to Understanding Cutaneous Lymphoma” New CTCL Fact Sheet From The LLS Available in English and Spanish •My Personal Journey:  Kory Floyd, PhD •Reach Out And Touch Someone:  Why Affection Is Good For You •Giving and Getting Involved Fourth Annual Music Moves Me Run •2011 American Society of Hematology Young Investigator Award Recipient •Celebrate Rare Disease Day on February 29, 2012

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Forum Fall 2011 Forum Fall 2011

In this issue: Clinical Trials:  A Pathway To Treatment for Cutaneous Lymphoma Patients • From the President and the Chief Executive Officer • Cutaneous Lymphoma Patient Educational Opportunities • My Personal Journey: Susan Ferguson • Patient Advocate Foundation Co-Pay Relief Program • My Personal Journey: David Smith • Taking Care Of The Whole Person Through Integrative Medicine • New Research Leads to More Effective CTCL Treatments • Clinical Trial for First-In-Class Topical Histone Deacetylase Inhibitor • Welcome New Board Members • Free Patient Education Materials • Annual Fund Campaign • A Doctor's Personal Journey: Francine Foss, MD • Webstie Re-Launch

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Forum Summer 2011 Forum Summer 2011

In this issue: •From the President and the Medical Advisory Board Chairman •From the Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •My Personal Journey With Cutaneous Lymphoma •Recognition at World Congress of Dermatology, Farewell to Amanda Kik •My Personal Journey With Cutaneous Lymphoma •Making Connections •Welcome Susan Thornton, Needs Assessment Update, Help Us Go Green •Itching for Answers, Continued •Understanding Itch •Medical Documentation, What Is Cutaneous Lymphoma? •Young Investigator Award, Tax-Free IRA Charitable Rollover •One Voice Against Cancer, Music Moves Me Run •World Lymphoma Awareness Day

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