Support

Cutaneous Lymphoma Patient Support
It is very lonely to have a disease that none of your friends have or understand. Sometimes you may feel like you're the "only one out there." Support can be very important. General cancer support groups may help, but they don't have information on the type of treatments you are receiving. Some options are the on-line support listserv, face-to-face meetings, and CTCL-specific groups. If you run a group, or are a member of a group, please let us know so we can publicize it for you.

On-line Support
Finding support on-line is a great way to connect with people and gather information. The Cutaneous Lymphoma Foundation maintains two free email listservs. read more...

Face-to-Face Meetings
These are occasional get-togethers where a patient plans a meeting (either at a home or restaurant). They usually consist of 6-15 patients and caretakers who meet to exchange their stories. If you are interested in organizing a get-together, let us know (email us or call 248-644-9014) and we'll let you know how to do it and publicize it here and through the CTCL-MF Listserv.

Patient Assistance Programs
Having trouble affording treatments? Need to travel long distances to receive treatments?

There are a growing number of patient assistance programs to help. Some offer financial assistance, while others provide free or discounted flights to patients unable to afford travel expenses associated with their treatment needs.

Help is available – sometimes it just takes a little looking around. Below is an incomplete list of patient assistance programs. read more...