CLF 2012-13 Annual Rpt - page 6-7

Cutaneous Lymphoma Foundation
7
6
2012-2013 Annual Report
• Serving over 650 patients
and caregivers at our six
Patient Educational
Forums
and collaborating
in eight affiliated
educational events in 17
cities throughout the United
States, Canada and the
United Kingdom.
2012 - 2013 Highlights
During the past fiscal year (July 1, 2012– June 30, 2013), the Cutaneous Lymphoma Foundation made progress
on many fronts including:
• Connecting with 1000+ individual patients
through
one-to-one support services
and/or
filling
requests for literature
.
• Increasing cutaneous lymphoma
awareness in the medical community
by attending the following
medical
meetings
:
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0
American Society of Hematology
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0
American Academy of Dermatology
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0
American Society of Clinical Oncologists
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0
European Organisation for Research and
Treatment of Cancer (EORTC)
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0
International Investigative Dermatology
in Edinburgh, Scotland
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0
Dermatology Nurses Association
• Launched
CLARIONS Research Award Program
to
support medical research specific to cutaneous lymphoma
• Assisted in the creation of Washington DC-based
patient and caregiver networking group
.
• Increased participation with
collaborative groups
:
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0
Coalition of Skin Diseases
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0
Lymphoma Coalition
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0
Canadian Patient Skin Alliance
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Patient Advocate Foundation
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Regulatory Education and Action for Patients
• Increasing the visibility and needs of those affected by
CTCL to lawmakers through
advocacy
in Washington, DC,
including:
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0
One Voice Against Cancer
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0
Rare Disease Day 2013
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0
Coalition of Skin Diseases Lobby on the Hill
• Held first annual
2-Day Cutaneous Lymphoma
Patient Conference
in Philadelphia, PA
• Presented
Young Investigator Awards
(YIA) to:
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0
Georgia Saporiti, MD, University of Milan,
Italy for the American Society of Hematology
(ASH) Annual Meeting
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0
Sima Rozati, MD, University Hospital
Zurich for the International Investigative
Dermatology (IID) Meeting
1,2-3,4-5 8-9,10-11,12-13,14-15,16
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