Resources

Online Support Groups

Cutaneous Lymphoma Online Support

Online support communities such as listservs can directly link people living with cutaneous lymphoma to one another via email. The Cutaneous Lymphoma Foundation is pleased to promote the following listservs for this purpose:

CTCL-MF Listserv

The CTCL-MF Listserv is a free discussion list hosted by ACOR (Association for Cancer Online Resources) for patients, family, friends, researchers and physicians to discuss clinical and non-clinical issues and advances pertaining to cutaneous lymphomas, including mycosis fungoides, Sézary syndrome and related diseases. The list includes information about patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices.

To join the list, click here; or,

• E-mail: listserv@listserv.acor.org

• Leave subject area blank

• In message area, type: Subscribe CTCL-MF your name

CTCL-MF Parent Online Support Group

Parents of children diagnosed with cutaneous T-cell lymphoma have unique questions and issues. This online support group is small, free and just for you.

To join the list, click here; or,

• E-mail: listserv@listserv.acor.org

• Leave subject area blank

• In message area, type: Subscribe CTCL-MF-Parents your name

Mycosis Fungoides UK Online Support Group

http://health.groups.yahoo.com/group/mycosisfungoidesint/

This online support group is primarily for patients and relatives/friends of patients who have mycosis fungoides and are living in the UK, but anyone is welcome to join no matter what country you live in. Note: The above link will open in a new window and will take you away from the Cutaneous Lymphoma Foundation web site.

Lymphomatoid Papulosis Online Support Group

http://health.groups.yahoo.com/group/LyPSupport

This international online support group, formed in 1998, is for adults and parents of children who have lymphomatoid papulosis (LyP). Note: The above link will open in a new window and will take away from the Cutaneous Lymphoma Foundation web site.

Members who join the listservs above express how valuable their participation has been with helping them learn about cutaneous lymphoma from others, receive and share tips about how to cope with symptoms, and build friendships.

We hope you benefit from participation in these listservs and, if you need personal assistance anytime with joining them, please contact us at 248.644.9014, ext. 3, or info@clfoundation.org.