Resources

Cutaneous Lymphoma Foundation Forum

The Cutaneous Lymphoma Foundation publishes a printed newsletter, Forum, which provides relevant, timely cutaneous lymphoma news, information and resources to patients, caregivers, physicians, researchers and the larger cutaneous lymphoma community.

This newsletter is the only publication of its kind in the world dedicated to providing news about educational opportunities, disease-specific information, treatment options, treatment side effects, tips for coping with symptoms, resources for support, clinical trials, advocacy updates, Foundation happenings and much more.

To join our mailing list and receive future issues of Forum, contact us at info@clfoundation.org. In your email, please let us know if you would like to receive your issues via email, which will help the Foundation save resources in printing/mailing costs.

To order back issues of Forum, click here.

Forum Winter 2011

Forum Winter 2011

In this issue: • Needs Assessment • Fall 2010 Patient Educational Forums • Help Us Go Green • A Patient’s Story: A Man in the Arena • Patient Assistance Programs • Support a Third Party Fundraiser Benefiting the Cutaneous Lymphoma Foundation • A Caregiver’s Story: My Personal Journey with the Cutaneous Lymphoma Foundation • 2009 Cutaneous Lymphoma Summit Proceedings Published • Welcome New Director of Programs and Services • Highlights from the First World Congress of Cutaneous Lymphomas • Annual Fund Campaign • Planned Giving Feature: The Bequest • Cutaneous Lymphoma Patient Educational Opportunities • Website Re-Launch

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Forum Fall 2010

Forum Fall 2010

In this issue: Educational and Inspirational Patient Event Held in Dallas • Board Thanks Richard Bradlow for Service • A Caregiver’s Story • Cutaneous Lymphoma Foundation Recognized in Prominent Medical Journal • Cutaneous Lymphoma Foundation CEO Joins the American Academy of Dermatology in DC • Cutaneous Lymphoma Foundation Young Investigator Travel Award Presented at Annual Dermatology Research Meeting • Itch-Specific Neuronal Pathway Revealed • Cutaneous Lymphoma Foundation Seeks Board Member Nominations • Become Involved: Join a Committee • Oxsoralen-Ultra (Methoxsalen Capsules, USP, 10mg) Is Now Available Again in the US on a Limited Basis • Nitrogen Mustard Update • Music Moves Me 10K • Dr. Marie-France Demierre • Planned Giving to the Cutaneous Lymphoma Foundation: Leaving a Personal Legacy Through Strategic Giving • Welcome New CEO

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Forum Winter 2009

Forum Winter 2009

In this issue: World Rare Disease Day • Coalition 2009 • Cutaneous Lymphoma Foundation Receives Partner Award • Should I Get the Flu Shot? • Shortage of Oxsoralen-Ultra for PUVA • Triathalete Exceeds Fundraising Goal in Memory of His Father • Bike/Kayak Trip for CTCL

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Forum Spring 2009

Forum Spring 2009

In this issue: Music Moves Fundraisers to Support Cutaneous Lymphoma Foundation • Cutaneous Lymphoma Patient Educational Opportunities • Cutaneous Lymphoma Summit 2009 • Can You Recognize This Skin Disease? • Camp Discovery • Cutaneous Lymphoma Foundation Presents Young Investigator Award • Team Kayaks and Bikes from Plattsburgh to Manhattan to Raise Awareness of CTCL

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Forum Spring 2008

Forum Spring 2008

In this issue: NCCN Practice Guidelines in Mycosis and Sézary Syndrome Now Available • Cutaneous Lymphoma Foundation Welcomes New Board Member • Clinical Trials Update • Cutaneous Lymphoma Patient Educational Opportunities • Advocacy: Skin Disease Research Day • Raise Money with FirstGiving • NIAMS Day • Curing Advanced CTCL Patients: The Option of Bone Marrow Transplantation

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Forum Winter 2008

Forum Winter 2008

In this issue: Cutaneous Lymphoma Foundation Welcomes New Executive Director • What's on the Horizon • Cutaneous Lymphoma Patient Educational Opportunities • Biking Buddies • Ask the Expert: How Do I Know What Treatment is Right For Me? • Treatment Decision Making • Bio Commemorates the 25th Anniversary of the Orphan Drug Act

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Forum Fall 2007

Forum Fall 2007

In this issue: Research Discovers CTCL Incidence Rising in US • Stress Management • Cutaneous Lymphoma Patient Educational Opportunities • Fundraising for the Cutaneous Lymphoma Foundation • Cutaneous B-Cell Lymphoma Overview

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Forum Summer 2007

Forum Summer 2007

In this issue: • Ask the Expert: Why do I Itch? • Democracy in Action • Participate in an Itch Study • Coping with CTCL: One Patient's Philosophy • CTCL-MF Online Support • Free Information About Extracorporeal Photopheresis • Coalition of Skin Diseases Advocates at the American Academy of Dermatology Annual Meeting • Cutaneous Lymphoma Treatment Options Presented at Dermatology Nurses' Association Annual Meeting • Cutaneous Lymphoma Patient Educational Opportunities

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Forum Winter/Spring 2007

Forum Winter/Spring 2007

In this issue: Ground-breaking Quality of Life Research • From the President: Diving into the Board • A Changing Board • Giving Made Easy with the Pension Protection Act of 2006 • Clinical Trials • Ask the Expert: Questions about PUVA • International Spotlight for T-Cell Lymphomas • Cutaneous Lymphoma Patient Educational Forums

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Forum Fall 2006

Forum Fall 2006

In this issue: Cutaneous Lymphoma Patient Forum a Worthwhile Endeavor • Clinical Trial Opportunity for Cutaneous T-Cell Lymphoma • BiCNU (Carmustine) Shortage • Topical Nitrogen Mustard Study • The Portal • New Educational Materials Now Available • CTCL Diagnosis and Staging • Upcoming Patient Educational Opportunities

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Forum Supporters

The Cutaneous Lymphoma Foundation patient educational newsletter, Forum, has been made possible in the year 2014 thanks to the following generous supporters:

Actelion
Celgene
Medicis

Therakos Photopheresis
Spectrum Pharmaceuticals
Seattle Genetics