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Cutaneous Lymphoma Foundation Forum

The Cutaneous Lymphoma Foundation publishes a printed newsletter, Forum, which provides relevant, timely cutaneous lymphoma news, information and resources to patients, caregivers, physicians, researchers and the larger cutaneous lymphoma community.

This newsletter is the only publication of its kind in the world dedicated to providing news about educational opportunities, disease-specific information, treatment options, treatment side effects, tips for coping with symptoms, resources for support, clinical trials, advocacy updates, Foundation happenings and much more.

To join our mailing list and receive future issues of Forum, contact us at info@clfoundation.org. In your email, please let us know if you would like to receive your issues via email, which will help the Foundation save resources in printing/mailing costs.

To order back issues of Forum, click here.

Forum Issue 2 2014

Forum Issue 2 2014

In this issue: • Tips for Lesion Care • From the President and the Chief Executive Officer • My Personal Journey: Oded Pollack • Fun in the Sun with Cutaneous Lymphoma • 2-Day Patient Conference Update • Skin Care Solutions • My Personal Journey: Gail Baril • Cutaneous Lymphoma Patient Educational Opportunities •You Can Make a Difference • SID Annual Meeting Highlights • SID Young Investigator Award • Advocacy Highlights • New Treatment Guide Available

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Forum Issue 1 2014

Forum Issue 1 2014

In this issue: • The Challenge of Developing New Therapies • From the President and the Chief Executive Officer • My Personal Journey With Cutaneous Lymphoma: Ken Mawson • Call Me Lucky • Welcome New Board Members and Staff • New Diagnostic Technology Has Potential for Cutaneous Lymphoma • Cutaneous Lymphoma Patient Educational Opportunities • 2-Day Patient Conference • 6th Annual T-Cell Forum Highlights • ASH Young Investigator Award • CLARIONS Research Grant Awards • Where Are They Now? Catching Up With Past YIA Recipients • 2014 CLARIONS Grant

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Forum Fall 2013

Forum Fall 2013

In this issue: • Diagnosing and Treating Young CTCL Patients • From the President and the Chief Executive Officer • Welcome New Board Member • My Personal Journey With Cutaneous Lymphoma: Donna Hussey • Cheryl's Tips for Staying "Sane" During Treatment • The Affordable Care Act: The Basics Cancer Patients Need to Know • Cancer Insurance Checklist • Cutaneous Lymphoma Patient Educational Opportunities • Advocacy Highlights • 7th World Congress on Itch Highlights

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Forum Summer 2013

Forum Summer 2013

In this issue: • How to Live a Life of Joy • From the President and the Chief Executive Officer • Washington, DC Area Patient/Caregiver Networking Group Formed • Alive With Mycosis Fungoides - A Patient's Perspective • My Personal Journey With Cutaneous Lymphoma: A Caregiver's Story • CLF 2-Day Patient Conference Overview • Cutaneous Lymphoma Patient Educational Opportunities • One Voice Against Cancer - Lobby Day 2013  • Highlights from IID Medical Meetings and ASCO • You Too Can Make A Difference

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Forum Spring 2013

Forum Spring 2013

In this issue: • Advancing Research - An Evolution • Interview with CLARIONS Grant Leader: Thomas S. Kupper, MD • From the President and the Chief Executive Officer • In Memorium: Thomas Frank • What's Next - A Patient's Perspective • My Personal Journey: Joe Carey • Global Rare Diseases Registry and Data Repository (GRDR) • Cutaneous Lymphoma Patient Educational Opportunities • CLF 2-Day Patient Conference • Silent Auction • Scientific Meetings Recap • Rare Disease Day 2013 • CLARIONS Grant

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Forum Fall 2012

Forum Fall 2012

In this issue: • Nurses- Front Line Soldiers in the Fight Against Cutaneous Lymphoma • From the President and the Chief Executive Officer • Cutaneous Lymphoma Patient Educational Opportunities • My Personal Journey: Francesca R. Giancotti, PhD • Insurance: Know Your Policy • My Personal Journey: Andrew Lotz • A Caregiver's Story: It's My Journey Too - Meredith Wallace • "Toast & Jam" - Andrew McDiamid • Advocacy in Action Summaries • Medical Meetings Recap • Cutaneous Lymphoma Foundation's Annual Fund Campaign • A Year in Review - What Your Donations Have Accomplished • EORTC - Cutaneous Lymphoma Task Force Annual Meeting

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Forum Spring 2012

Forum Spring 2012

In this issue: •Cutaneous T-Cell Lymphoma: A Oncologist’s Perspective •From the President and the Interim Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •Systemic Therapies •Announcing New Additions to the Foundation Team •Get Help Traveling To and From Treatment •2012 SID Young Investigator Award •Conversation with a Patient: "I Want to Help Other People" •Workplace and Cancer •Hair Loss and Cutaneous T-Cell Lymphoma •The Patient Mailbag •M y Personal Journey: Nikki Thomason •New Strategic Plan Sets Roadmap for Foundation's Future •New Patient's Guide to Understanding Cutaneous Lymphoma •Message from Kira Mann, Director of Development •Let Us Count You In For Our Annual Fund Campaign •Highlights from the United States Cutaneous Lymphoma Consortium Annual Workshop •New Research Awards Program

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Forum Winter 2012

Forum Winter 2012

In this issue:  •Cutaneous T-Cell Lymphoma: A Dermatologist’s Perspective •From the President and the Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •My Personal Journey:  Laurel Carlson •Skin-Directed Therapies •Highlights from the ASH 2011 Annual Meeting •My Personal Journey:  Joseph Eischens •Good Skin Care Tips •Coming Soon: Our New “Patient’s Guide to Understanding Cutaneous Lymphoma” New CTCL Fact Sheet From The LLS Available in English and Spanish •My Personal Journey:  Kory Floyd, PhD •Reach Out And Touch Someone:  Why Affection Is Good For You •Giving and Getting Involved Fourth Annual Music Moves Me Run •2011 American Society of Hematology Young Investigator Award Recipient •Celebrate Rare Disease Day on February 29, 2012

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Forum Fall 2011

Forum Fall 2011

In this issue: Clinical Trials:  A Pathway To Treatment for Cutaneous Lymphoma Patients • From the President and the Chief Executive Officer • Cutaneous Lymphoma Patient Educational Opportunities • My Personal Journey: Susan Ferguson • Patient Advocate Foundation Co-Pay Relief Program • My Personal Journey: David Smith • Taking Care Of The Whole Person Through Integrative Medicine • New Research Leads to More Effective CTCL Treatments • Clinical Trial for First-In-Class Topical Histone Deacetylase Inhibitor • Welcome New Board Members • Free Patient Education Materials • Annual Fund Campaign • A Doctor's Personal Journey: Francine Foss, MD • Webstie Re-Launch

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Forum Summer 2011

Forum Summer 2011

In this issue: •From the President and the Medical Advisory Board Chairman •From the Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •My Personal Journey With Cutaneous Lymphoma •Recognition at World Congress of Dermatology, Farewell to Amanda Kik •My Personal Journey With Cutaneous Lymphoma •Making Connections •Welcome Susan Thornton, Needs Assessment Update, Help Us Go Green •Itching for Answers, Continued •Understanding Itch •Medical Documentation, What Is Cutaneous Lymphoma? •Young Investigator Award, Tax-Free IRA Charitable Rollover •One Voice Against Cancer, Music Moves Me Run •World Lymphoma Awareness Day

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Forum Supporters

The Cutaneous Lymphoma Foundation patient educational newsletter, Forum, has been made possible in the year 2014 thanks to the following generous supporters:

Actelion
Celgene
Medicis

Therakos Photopheresis
Spectrum Pharmaceuticals
Seattle Genetics