American Cancer Society
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. Headquartered in Atlanta, GA, the ACS has state divisions and more than 3,400 local offices. The national ACS mission statement says that the ACS is “dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy and service.” The ACS website provides information on all types of cancer, related resources and ACS programs. For more information, call 800.227.2345 or visit www.cancer.org.
Association of Cancer Online Resources
The Association of Cancer Online Resources (ACOR) hosts a large collection of free cancer-related Internet mailing lists and support communities. ACOR develops and hosts state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their families. For more information, visit www.acor.org.
Cancer.Net (An ASCO Website)
ASCO’s patient information website -- Cancer.Net (www.cancer.net) -- brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them. Well-informed patients are their own best advocates and invaluable partners for physicians. Cancer.Net provides timely, comprehensive information to help patients and families make informed health care decisions. For more information, visit www.cancer.net or call 888.651.3038.
CancerCareis a national nonprofit organization that provides free, professional help to people with all cancers through counseling, education, information and referral, and direct financial assistance. CancerCarehas a variety of programs in place to assist those in need. For more information, visit www.cancercare.org or contact 800.813.HOPE (4673).
Cancer Support Community
The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. The CSC is an international nonprofit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest quality cancer support to the millions of people touched by cancer. These support services are available through a network of professionally-led community-based centers, hospitals, community oncology practices and online, so that no one has to face cancer alone. For more information, visit www.cancersupportcommunity.org or contact 888.793.9355.
Cancer Survivor Toolbox
The Cancer Survivor Toolbox®is a program of the National Coalition for Cancer Survivorship. The toolbox is a free audio program designed to help cancer survivors and caregivers develop practical skills to deal with the diagnosis, treatment and challenges of cancer. Transcripts of the program are also available for reading if preferred. For more information, call 877.622.7937 or visit www.canceradvocacy.org/toolbox/.
CarePages are free, personal, private web pages that help family and friends communicate when someone is receiving care. CarePages has partnered with Lotsa Helping Hands (listed on page 113) to provide friends, family, colleagues and neighbors with a system for coordinating their efforts to assist loved ones in need. For more information, visit www.carepages.com or call 888.852.5521.
CaringBridge is a nonprofit organization offering free personalized websites to those wishing to stay in touch with family and friends during significant life events. Their mission is “to bring together a global community of care powered by the love of family and friends in an easy, accessible and private way.” CaringBridge authors can quickly and easily create personalize websites that display journal entries and photographs. Well-wishers visit the site to read updates and leave messages in the Guestbook. For more information, visit www.caringbridge.org or call 651.452.7940.
Fertile Hope is part of the LIVESTRONG organization and is dedicated to providing reproductive information, support and hope to cancer patients whose medical treatments present the risk of infertility. For more information, visit www.fertilehope.org or call 855.220.7777.
Hope For Two...Pregnant With Cancer Network
The Pregnant With Cancer Network is a national nonprofit organization for women diagnosed with cancer during pregnancy. Their mission is to connect women who are pregnant with cancer with other women who are pregnant with the same type of cancer. For more information, call 800.743.4471 or visit www.pregnantwithcancer.org.
LIVESTRONG Foundation is a nonprofit organization that provides support to guide people through the cancer experience, bring them together to fight cancer – and work for a world in which our fight is no longer necessary. They use the philosophy that “unity is strength, knowledge is power and attitude is everything” and they provide practical tools and information to help the cancer community. For more information, call 855.220.7777 or visit www.livestrong.org.
Lotsa Helping Hands
Lotsa Helping Hands is a simple immediate way for friends, family, colleagues and neighbors to assist loved ones in need. Users can create a free, private web page and then invite family and friends to view a private group calendar specifically designed for organizing helpers. The aim is to facilitate everyone pitching in with the tasks necessary for life to run smoothly during a crisis such as delivery of meals, rides, babysitting and many others. For more information, visit www.lotsahelpinghands.com.
National Children’s Cancer Society
For survivors of childhood cancers, the National Children’s Cancer Society (NCCS) has created a program called Beyond The Cure. The mission of Beyond The Cure is to help childhood cancer survivors integrate the cancer experience into their new life as survivors and successfully handle the challenges that are ahead of them and to celebrate survivorship. For more information, visit www.beyondthecure.org or call 800.5.FAMILY (32-6459).
National Coalition for Cancer Survivorship
The National Coalition for Cancer Survivorship (NCCS) is the oldest survivor-led cancer advocacy organization in the U.S. and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS has also developed several programs with the goal of informing and empowering all those dealing with a cancer diagnosis through credible and accurate patient information. For more information, visit www.canceradvocacy.org or call 877.622.7937.
National LGBT Cancer Network
The National LGBT Cancer Network works to improve the lives of LGBT cancer survivors and those at risk by educating LGBT people and health providers about the cancer risks and survivor experiences of gay men, lesbians, bisexuals and transgender people; increasing awareness of LGBT cancer risks and survivor experiences; advocating for high quality research on LGBT cancer risks, treatment and survivorship; giving voice to LGBT cancer survivors; and offering consultation to healthcare providers. For more information, visit www.cancer-network.org.
National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a nonprofit organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. For more information, call 202.588.5700 or visit www.rarediseases.org.
Patient Advocate Foundation
The Patient Advocate Foundation is a national nonprofit organization whose mission is to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. For more information, visit www.patientadvocate.org or contact 800.532.5274.
United Way of America
The United Way of America offers local toll-free information lines linking people to community resources and services such as emergency housing and food assistance. For more information and contact information on your local office, visit www.unitedway.org.