Resources

Additional Resources

New Video Series For Young Adults With Cancer: Moving Forward: Perspectives from Survivors and Doctors

The American Society of Clinical Oncology (ASCO) and the Lance Armstrong Foundation recently announced the launch of a new video series for young adults with cancer that will be featured on ASCO’s patient information website Cancer.Net, Lance Armstrong Foundation’s Planet Cancer, and YouTube. The series, “Moving Forward: Perspectives from Survivors and Doctors,” addresses critical issues that young adults with cancer may face and helps them better understand and cope with challenges related to their diagnosis.  These videos are available free of charge as a resource for young adults to better understand and cope with their diagnosis.

The “Moving Forward” series will present 13 companion videos for young adults that provide insight from survivors and information from doctors on important topics. Released already are the first four video pairs in the series, including an introduction, and information on fertility, fear of recurrence, and bills and medical expenses. Each month new videos featuring ASCO members will be paired with survivor vignettes addressing issues such as body changes, dating and sexuality, diet and exercise, family and friends, fear of dying, health insurance, pain, school and work.

Learn more about “Moving Forward” by visiting www.cancer.net/movingforward.

Air Travel With Medications

Many questions arise for patients who need to travel on an airplane with their medications. Click here to access a section on the U.S. Transportation Security Administration’s website with information on traveling with medications. 

Click here to access additional information provided from the TSA.

New CTCL Fact Sheet From The LLS Available in English and Spanish

The Leukemia and Lymphoma Society has published a new fact sheet on cutaneous T-cell lymphoma (CTCL) available in both English and Spanish.  This comprehensive fact sheet includes information on the various forms of CTCL, stages, treatment options, and resources available for help. 

Click here to download the English version.

Click here to download the Spanish version.

American Academy of Dermatology's Camp Discovery:  Changing Lives Through Life-Changing Experiences

Founded in 1993, Camp Discovery is for young people with chronic skin conditions and offers a summer camping experience unlike any they've ever had.  Each year since 1993, the American Academy of Dermatology sponsors a week of fishing, boating, swimming, arts and crafts, and just plain fun for these children in a safe and nurturing environment with no stares and no questions about their skin condition. 

Under the expert care of dermatologists and nurses, Camp Discovery offers young people the opportunity to spend a week with other campers who have similar skin conditions.  Many of the counselors have skin conditions as well and can provide support and advice to campers.

There is no fee for camp.  Full scholarships, including transportation, are provided by the AAD through generous donations from its members, other organizations and individuals. 

Many camp experiences across the United States are scheduled in 2012 including:

Camp Little Pine, Crosslake, MN; June 24-29
Camp Reflection, Carnation, WA; June 25-29
Camp Big Trout, Crosslake, MN; July 8-13
Camp Dermadillo, Burton, TX; August 5-10
Camp Horizon, Millville, PA; August 11-18
Camp Liberty, Hebron, CT; August 12-17

For more information about Camp Discovery, contact the AAD at 847.240.1737 or jmueller@aad.org. 

Medicare Formulary Finder for Prescription Drug Plans

The Formulary Finder for Prescription Drug Plans will allow you to find plans in your state that match your required drug list. Visit this web page to access this resource:

http://plancompare.medicare.gov/pfdn/FormularyFinder/LocationSearch

Cancer Resources Available in Spanish

The most reliable, up-to-date information about cancer is available in Spanish.  The National Cancer Institute (NCI) is pleased to offer a new Spanish website on www.cancer.gov en español. Information about mycosis fungoides and Sezary syndrome is available en español on this web page:

http://www.cancer.gov/espanol/pdq/tratamiento/micosisfungoide/Patient

Cancer and the Workplace 

Many patients diagnosed with cutaneous lymphoma have questions about how to navigate workplace challenges.  Click here to access a comprehensive article on this topic authored by Carolyn Messner, DSW, MSW, LCSW-R, BCD, Director of Education and Training, CancerCare.