Home: Publications: Forum Archives: MFF Forum, edition 3
From
the Executive Director
by
Judy Jones, Executive Director, Mycosis Fungoides Foundation
The
Mycosis Fungoides Foundation is moving forward at a rapid pace considering
we have only been in existence four years. Since our last newsletter,
we now have an active Board of Directors that is responsible for
strategic planning and major policy decisions. The board also pays
close attention to the organization's financial resources. Finally,
the board is responsible for MFF accountability and integrity. The
success of nonprofit organizations depends on good board members.
We have gathered a group of people who believe in our mission and
are willing to spend the time to do the job well. Take time to read
about them in this issue of our newsletter.
Thanks to all of you who
have joined the Mycosis Fungoides Foundation, those who have contributed
a little extra, and those who have donated in memory of loved ones.
You have kept us running. All of the money donated goes directly
into patient services as we have no full-time staff. As we grow,
we realize that a few people aren’t able to provide the funding
for everyone. If you have not joined us yet, please take the time
right now to fill out the form in this newsletter and send it in.
The Board of Directors is
now kicking off our first fundraising effort. Watch for a letter
in your mailbox. The most common comment I hear from patients is, “I
was scared and lonely until I was able to find more information about
a disease I had never heard of before.” Many of us went years
not having that information. One of our goals is to provide this
service to patients and to let them know there are others out here
that understand. Help us to continue in that effort.
Meanwhile, MFF continues
to provide awareness of the disease, so physicians will recognize
it and be able to diagnosis it earlier. We met with many physicians
and researchers last month at the American Academy of Dermatology
Annual Meeting. We also met many wonderful nurses at the Dermatology
Nurses meeting who have requested our brochures and have kept us
busy sending them out.
As you can see, there are
many exciting opportunities opening to us. We look forward to your
continued support.
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