Home: Publications: Forum Archives: MFF Forum, edition 2
Did You Know?
• Leah Yudle, a member
of the CTCL-MF listserv wrote an article, "Healing From the
Inside Out --One Person's Path With Cutaneous T-Cell Lymphoma-Mycosis
Fungoides" that has been published in the Journal of the American
Medical Association. Leah is a speech/language pathologist, technical
editor, and artist from Lexington, Massachusettes.
• The American Academy
of Dermatology pamphlet committee is publishing a CTCL booklet for
physicians to distribute to patients.
• ICN Pharmaceuticals
is updating their PUVA Resource Directory. Doreen Hudson and Judith
Shea have been working with them so patients will be able to find
treatment facilities more easily. The directory will be available
from ICN Pharmaceuticals, Mycosis Fungoides Foundation, and
on our web site at www.MFFoundation.org.
• The Dermatology Nurses'
Association has a Photopheresis/CTCL Speciality Interest Group headed
up by Sue McCann, MSN, RN, DNC.
• The Mycosis Fungoides
Foundation, in partnership with the Society of Investigative
Dermatology and industry leaders, will host the first annual CTCL
symposium to be held in May, 2003. The purpose is to promote new
research in CTCL and encourage young investigators to specialize
in CTCL research.
• The National Psoriasis
Foundation (NPF) worked with the American Academy of Dermatology
(AAD) to initiate a campaign for higher Medicare phototherapy rates,
responding to a concern that physicians were not being adequately
reimbursed for these procedures. We thank them for their successful
efforts to increase reimbursement rates by 50%. These higher rates
for UVB and PUVA will make it more financially viable for physicians
to offer phototherapy, thus making these therapies more accessible
for those medicare patients who benefit from these treatments.
• Sherry Pickett is
starting a support group at Henry Ford Hospital in Detroit, Michigan
this fall. Additional information is available from the Mycosis
Fungoides Foundation.
• Nick is turning 13
in November. Good luck as you start back to school. In a future newsletter
we'll discuss how this disease affects children.
• Marcia Beauchamp
and Amanda Jones volunteered their time to help staff our exhibit
booth at the American Academy of Dermatology Annual Meeting.
