Newsletters

Patient Advocacy Issues

The Mycosis Fungoides Foundation follows issues that affect patient care. These are the issues we are currently supporting:

Medicare and Phototherapy: The Medicare reimbursement rates for phototherapy dropped dramatically this past year. In some cases, it was costing physicians to provide treatment. We are urging Medicare to consider increasing the reimbursement rates back to the 2003 levels. This will enable physicians to continue providing phototherapy treatments for our patients.

Orphan Drug Tax Credit: We are supporting this proposal that will provide critical incentives to biotech and pharmaceutical companies to continue their work in developing therapies for small patient populations such as ours. By reducing the costs of developing medicines for rare diseases, the credit allows companies to develop products that would otherwise not make sense financially.