Newsletters

From the Executive Director

by Judy Jones, MFF Executive Director

Rarely am I blown away by a comment, but it happened this week when trying to find an accounting firm to do an audit so we can apply for the Combined Federal Campaign Fund. I had sent our past newsletters to an accounting firm and they were impressed with what we had accomplished. When I told him what our budget was, there was complete silence. Then he said, "I just assumed your budget was over four times that amount…we don’t work with anything that small."

As I look back on this year coming to a close, I think we have done a pretty impressive job of fulfilling our mission to promote awareness and education, advance patient care, and facilitate research. We provided thousands of patients and physicians with information about the disease. We provided patient information and support though our CTCL-MF listserv. We presented a research symposium for physicians. We’ve introduced patients to others at support groups, educational forums and lunch!

The one thing I’ve fallen down on is asking for donations. We do run on a very limited budget. We are able to do this because we have a working, volunteer board of directors, executive director and medical advisory board. We do pay our webmaster/newsletter editor a part-time hourly wage, but have no paid staff. A higher percentage of donations to the MFF are going directly into patient services because of our low overhead.
If you have given to the MFF recently, thank you. If you are considering end-of-the year giving to a worthy cause, think of us. With your help, we can continue to expand our programs.