Newsletters

Did You Know?

• Leah Yudle, a member of the CTCL-MF listserv wrote an article, "Healing From the Inside Out --One Person's Path With Cutaneous T-Cell Lymphoma-Mycosis Fungoides" that has been published in the Journal of the American Medical Association. Leah is a speech/language pathologist, technical editor, and artist from Lexington, Massachusettes.

• The American Academy of Dermatology pamphlet committee is publishing a CTCL booklet for physicians to distribute to patients.

• ICN Pharmaceuticals is updating their PUVA Resource Directory. Doreen Hudson and Judith Shea have been working with them so patients will be able to find treatment facilities more easily. The directory will be available from ICN Pharmaceuticals, Mycosis Fungoides Foundation, and on our web site at www.MFFoundation.org.

• The Dermatology Nurses' Association has a Photopheresis/CTCL Speciality Interest Group headed up by Sue McCann, MSN, RN, DNC.

• The Mycosis Fungoides Foundation, in partnership with the Society of Investigative Dermatology and industry leaders, will host the first annual CTCL symposium to be held in May, 2003. The purpose is to promote new research in CTCL and encourage young investigators to specialize in CTCL research.

• The National Psoriasis Foundation (NPF) worked with the American Academy of Dermatology (AAD) to initiate a campaign for higher Medicare phototherapy rates, responding to a concern that physicians were not being adequately reimbursed for these procedures. We thank them for their successful efforts to increase reimbursement rates by 50%. These higher rates for UVB and PUVA will make it more financially viable for physicians to offer phototherapy, thus making these therapies more accessible for those medicare patients who benefit from these treatments.

• Sherry Pickett is starting a support group at Henry Ford Hospital in Detroit, Michigan this fall. Additional information is available from the Mycosis Fungoides Foundation.

• Nick is turning 13 in November. Good luck as you start back to school. In a future newsletter we'll discuss how this disease affects children.

• Marcia Beauchamp and Amanda Jones volunteered their time to help staff our exhibit booth at the American Academy of Dermatology Annual Meeting.