"How will a small, disease-specific organization be able to make a difference?" One of the answers is collaboration. Working together with related groups, we can share information and work toward common causes. Mycosis Fungoides Foundation can be the clearinghouse for accurate information on CTCL and provide this to other medical and patient organizations. They can include us in their educational materials and programs. We can work with larger disease specific organizations that have a T-cell component (National Psoriasis Foundation, National Alopecia Areata Foundation, etc.) to support research and other issues we have in common.
We have strong support from the medical community and have established an outstanding Medical Advisory Board. The medical community recognizes the value of a patient advocacy group.
A strong board of directors will keep us focused and on task. We have also put out a call for applications to our board of directors. At this time, we have commitments from Richard L. Edelson, M.D., from Yale University School of Medicine as our medical representative and Michael W. Young from Ligand Pharmaceuticals as our industry representative. If you have interest in applying for a position on our board, there is additional information on our website: www.MFFoundation.org or call: 248-644-9014.
The Mycosis Fungoides Foundation display at the American Academy of Dermatology Annual Meeting.
Judy Jones and Judith Shea accepting an unrestricted educational grant from Michael Young of Ligand Pharmaceuticals.