Programs and Resources
Cutaneous Lymphoma Foundation Forum
The Cutaneous Lymphoma Foundation publishes a printed newsletter, Forum, which provides relevant, timely cutaneous lymphoma news, information and resources to patients, caregivers, physicians, researchers and the larger cutaneous lymphoma community.
This newsletter is the only publication of its kind in the world dedicated to providing news about educational opportunities, disease-specific information, treatment options, treatment side effects, tips for coping with symptoms, resources for support, clinical trials, advocacy updates, Foundation happenings and much more.
To join our mailing list and receive future issues of Forum, contact us at info@clfoundation.org. In your email, please let us know if you would like to receive your issues via email, which will help the Foundation save resources in printing/mailing costs.
To order back issues of Forum, click here.
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Forum Spring 2013 In this issue: • Advancing Research - An Evolution • Interview with CLARIONS Grant Leader: Thomas S. Kupper, MD • From the President and the Chief Executive Officer • In Memorium: Thomas Frank • What's Next - A Patient's Perspective • My Personal Journey: Joe Carey • Global Rare Diseases Registry and Data Repository (GRDR) • Cutaneous Lymphoma Patient Educational Opportunities • CLF 2-Day Patient Conference • Silent Auction • Scientific Meetings Recap • Rare Disease Day 2013 • CLARIONS Grant |
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Forum Fall 2012 In this issue: • Nurses- Front Line Soldiers in the Fight Against Cutaneous Lymphoma • From the President and the Chief Executive Officer • Cutaneous Lymphoma Patient Educational Opportunities • My Personal Journey: Francesca R. Giancotti, PhD • Insurance: Know Your Policy • My Personal Journey: Andrew Lotz • A Caregiver's Story: It's My Journey Too - Meredith Wallace • "Toast & Jam" - Andrew McDiamid • Advocacy in Action Summaries • Medical Meetings Recap • Cutaneous Lymphoma Foundation's Annual Fund Campaign • A Year in Review - What Your Donations Have Accomplished • EORTC - Cutaneous Lymphoma Task Force Annual Meeting |
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Forum Spring 2012 In this issue: •Cutaneous T-Cell Lymphoma: A Oncologist’s Perspective •From the President and the Interim Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •Systemic Therapies •Announcing New Additions to the Foundation Team •Get Help Traveling To and From Treatment •2012 SID Young Investigator Award •Conversation with a Patient: "I Want to Help Other People" •Workplace and Cancer •Hair Loss and Cutaneous T-Cell Lymphoma •The Patient Mailbag •M y Personal Journey: Nikki Thomason •New Strategic Plan Sets Roadmap for Foundation's Future •New Patient's Guide to Understanding Cutaneous Lymphoma •Message from Kira Mann, Director of Development •Let Us Count You In For Our Annual Fund Campaign •Highlights from the United States Cutaneous Lymphoma Consortium Annual Workshop •New Research Awards Program |
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Forum Winter 2012 In this issue: •Cutaneous T-Cell Lymphoma: A Dermatologist’s Perspective •From the President and the Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •My Personal Journey: Laurel Carlson •Skin-Directed Therapies •Highlights from the ASH 2011 Annual Meeting •My Personal Journey: Joseph Eischens •Good Skin Care Tips •Coming Soon: Our New “Patient’s Guide to Understanding Cutaneous Lymphoma” New CTCL Fact Sheet From The LLS Available in English and Spanish •My Personal Journey: Kory Floyd, PhD •Reach Out And Touch Someone: Why Affection Is Good For You •Giving and Getting Involved Fourth Annual Music Moves Me Run •2011 American Society of Hematology Young Investigator Award Recipient •Celebrate Rare Disease Day on February 29, 2012 |
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Forum Fall 2011 In this issue: Clinical Trials: A Pathway To Treatment for Cutaneous Lymphoma Patients • From the President and the Chief Executive Officer • Cutaneous Lymphoma Patient Educational Opportunities • My Personal Journey: Susan Ferguson • Patient Advocate Foundation Co-Pay Relief Program • My Personal Journey: David Smith • Taking Care Of The Whole Person Through Integrative Medicine • New Research Leads to More Effective CTCL Treatments • Clinical Trial for First-In-Class Topical Histone Deacetylase Inhibitor • Welcome New Board Members • Free Patient Education Materials • Annual Fund Campaign • A Doctor's Personal Journey: Francine Foss, MD • Webstie Re-Launch |
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Forum Summer 2011 In this issue: •From the President and the Medical Advisory Board Chairman •From the Chief Executive Officer •Cutaneous Lymphoma Patient Educational Opportunities •My Personal Journey With Cutaneous Lymphoma •Recognition at World Congress of Dermatology, Farewell to Amanda Kik •My Personal Journey With Cutaneous Lymphoma •Making Connections •Welcome Susan Thornton, Needs Assessment Update, Help Us Go Green •Itching for Answers, Continued •Understanding Itch •Medical Documentation, What Is Cutaneous Lymphoma? •Young Investigator Award, Tax-Free IRA Charitable Rollover •One Voice Against Cancer, Music Moves Me Run •World Lymphoma Awareness Day |
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Forum Spring 2011 In this issue: •Glossary of Diagnosis and Staging Term • Cutaneous Lymphoma Patient Educational Opportunities • My Personal Journey With Cutaneous Lymphoma • Recent Patient Educational Forum Highlights • Exploratory Pilot Study of Brentuximab Vedotin (SGN-35) • Mustargen® Shortage Update • Cutaneous Lymphoma Foundation Attendance at Medical Meetings • What Is Cutaneous Lymphoma? • My Personal Journey With Cutaneous Lymphoma • Welcome New Board Member Dr. Pierluigi Porcu • Help Us Go Green • Patient Resource Cancer Guides • Cutaneous Lymphoma Awareness Increased in USA Today Supplement |
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Forum Winter 2011 In this issue: • Needs Assessment • Fall 2010 Patient Educational Forums • Help Us Go Green • A Patient’s Story: A Man in the Arena • Patient Assistance Programs • Support a Third Party Fundraiser Benefiting the Cutaneous Lymphoma Foundation • A Caregiver’s Story: My Personal Journey with the Cutaneous Lymphoma Foundation • 2009 Cutaneous Lymphoma Summit Proceedings Published • Welcome New Director of Programs and Services • Highlights from the First World Congress of Cutaneous Lymphomas • Annual Fund Campaign • Planned Giving Feature: The Bequest • Cutaneous Lymphoma Patient Educational Opportunities • Website Re-Launch |
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Forum Fall 2010 In this issue: Educational and Inspirational Patient Event Held in Dallas • Board Thanks Richard Bradlow for Service • A Caregiver’s Story • Cutaneous Lymphoma Foundation Recognized in Prominent Medical Journal • Cutaneous Lymphoma Foundation CEO Joins the American Academy of Dermatology in DC • Cutaneous Lymphoma Foundation Young Investigator Travel Award Presented at Annual Dermatology Research Meeting • Itch-Specific Neuronal Pathway Revealed • Cutaneous Lymphoma Foundation Seeks Board Member Nominations • Become Involved: Join a Committee • Oxsoralen-Ultra (Methoxsalen Capsules, USP, 10mg) Is Now Available Again in the US on a Limited Basis • Nitrogen Mustard Update • Music Moves Me 10K • Dr. Marie-France Demierre • Planned Giving to the Cutaneous Lymphoma Foundation: Leaving a Personal Legacy Through Strategic Giving • Welcome New CEO |
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Forum Winter 2009 In this issue: World Rare Disease Day • Coalition 2009 • Cutaneous Lymphoma Foundation Receives Partner Award • Should I Get the Flu Shot? • Shortage of Oxsoralen-Ultra for PUVA • Triathalete Exceeds Fundraising Goal in Memory of His Father • Bike/Kayak Trip for CTCL |
Forum Supporters
The Cutaneous Lymphoma Foundation patient educational newsletter, Forum, has been made possible in the year 2012 thanks to the following generous supporters:
