Pittsburgh, PA, April 26, 2014

Cutaneous Lymphoma Patient Educational Forum - Pittsburgh, PA, April 26, 2014 Cutaneous Lymphoma Patient Educational Forum - Pittsburgh, PA, April 26, 2014

16th Brian V. Jegasothy Support Group for CTCL, in collaboration with the University of Pittsburgh Medical Center

Date and Time

Saturday, April 26, 2014 - 8:30am - 2:30pm

Location

University of Pittsburgh Medical Center
200 Lothrop St UPMC Biomedical Science Tower - South 120
Pittsburgh, PA 15209
United States
In the month of April, the Cutaneous Lymphoma Foundation traveled to Pittsburgh to participate in the 16th Brian V. Jegasothy Support Group for CTCL - Cutaneous Lymphoma Patient Education Forum. We worked in conjunction with the University of Pittsburgh Medical Center to provide attendees with some exciting updates and fascinating medical developments. We were fortunate to have some wonderful UPMC staff who dazzled us with their work including Sue McCann, Dr. Lisa Grandinetti, Dr. Oleg Akilov, Dr. Jennifer Villansenor-Park, Dr. Einat Rabinovich and also a member of the Hillman Cancer Center team, Joyce Diacopoulos. In addition to our wonderful clinical speakers, Andrew Lotz shared his personal story as a patient and lead an inspiring group discussion.

Agenda

8:30 am    Registration and Continental Breakfast

9:00 am    Welcome
Sue McCann, MSN, RN, DNC, University of Pittsburgh Medical Center; Lisa Grandinetti, MD, University of Pittsbugh Medical Center

9:05 am    Cutaneous Lymphoma Foundation Update
Susan Thornton, CEO  

9:30 am    Overview of CTCL and Treatment Options
Lisa Grandinetti, MD, Assistant Professor of Dermatology, Dermatology Residency Program Director, University of Pittsburgh Medical Center

10:00 am    Practical Skin Care for the CTCL Patient
Oleg Akilov, MD, PhD, Department of Dermatology, University of Pittsburgh 

10:20 am    Clinical Trials Update
Sue McCann, MSN, RN, DNC, University of Pittsburgh Medical Center

10:30 am    Break

10:45 am    Research Update - Biomarkers & New Testing for CTCL
Christiane Querfeld, MD, PhD, Memorial Sloan Kettering Cancer Center

11:15 am    Bench to Bedside Research Update
Einat Rabinovich, MD, University of Pittsburgh Medical Center; Jennifer Villasenor-Park, MD, PhD, University of Pittsburgh Medical Center

11:35 am    Q & A Panel - All Clinicians

11:50 pm    Lunch

12:50 pm    Patient Discussion Panel  

1:20 pm    Nutrition/Complimentary Modalities
Joyce Diacopoulos, RD, CSO, LDN, Hillman Cancer Center

1:50 pm    Patient and Caregiver Support Group Session Breakouts

2:30 pm    Conclusion

Download Agenda                  

Event Supporters

 The Cutaneous Lymphoma Foundation thanks the generous supporters of this educational forum:

Actelion
Celgene
Valeant
Therakos Photopheresis
Seattle Genetics
Spectrum Pharmaceuticals