Boston Patient Educational Forum Update

The Boston PEF was a jam-packed event which ran simultaneously with the Cutaneous Lymphoma Medical Education session sponsored by the Dana-Farber/Brigham and Women’s Cancer Center, Leukemia & Lymphoma Society and the Harvard Medical School. Opening with Dr. Rachel Clark's biology and research joint session with the attending physicians, the CLF's forum featured an additional five clinical presentations plus a patient panel discussion.

Currently available clinician presentation slides have been posted for downloading.

Comments from Attendees included:

Most helpful was...Sharing physicians' conference date and location, giving us (access to) physician lectures was absolutely remarkably informative.

Most helpful was...Interaction with doctors & researchers plus meeting other patients.

Most helpful was...Access to presentations by large number of providers and researchers who shared current findings to help inform decision-making; and interaction with other patients.

Agenda

7:30 am  Registration and Continental Breakfast and Patient Networking

8:00 am  Welcome
Susan Thornton, CEO, Cutaneous Lymphoma Foundation, Cutaneous Lymphoma Patient

8:15 am  New Insights into the Basic Biology of CTCL
Thomas S. Kupper, MD, Chairman, Dermatology, Brigham and Women’s Hospital
Rachel A. Clark, MD, PHD, Associate Dermatologist, Dermatology, Brigham and Women’s
Hospital

9:00 am  Diagnosis and Staging
Debjani Sahni, MD, Assistant Professor of Dermatology, Director, Cutaneous Oncology,
Boston Medical Center

9:45 am   Treatment Options
Frederick Lansigan, MD, Hematology/Oncology, Dartmouth-Hitchcock Medical Center

10:45 am  Radiation Oncology
Phillip Devlin, MD, Chief, Radiation Oncology, Brigham and Women’s Hospital

11:15 am  Itch & Quality of Life Measurements
Keri Chaney, MD, Dermatology, Brigham and Women’s Hospital

11:45 am  Question & Answer Panel

12:15 am  Lunch - Panel Discussion: Cutaneous Lymphoma Resources

1:15 pm    Clinical Trials: Why and What is Available: A Nurse’s Perspective
Marianne Tawa, RN, MSN, ANP, Dana Farber Cancer Center

1:45 pm    Cutaneous Lymphoma Foundation Update
Susan Thornton, CEO

2:15 pm   Patient Discussion

3:30 pm   Program Concludes