Cutaneous Lymphoma Patient Educational Forum
Date and Time
Saturday, April 20, 2013 - 8:30am - 3:00pm
Renaissance Dallas Hotel
2222 North Stemmons Freeway
, TX 75207
Update from the Dallas Cutaneous Lymphoma Patient Education Forum
Dr. Amit Pandya, Dr. Arianne Shadi Kourosh, LeDawn Feris, Jeffrey Stevens, and Susan Thornton
The Cutaneous Lymphoma Foundation held a patient educational forum in Dallas, Texas with Drs. Amit Pandya, Joseph Susa and Shadi Kourosh from the University of Texas Southwestern Medical Center.
Points of particular interest from physicians' presentations included:
- A new algorithm has been developed by the International Society for Cutaneous Lymphoma which relies on both clinical and histologic criteria. Histology is a science dealing with the structure of cells and their formation into tissues and organs.
- For oncologists, often the histologic diagnosis is the final diagnosis; however, primary cutaneous lymphomas may not be classified on the basis of histologic criteria alone.
- Different types of CTCL may have different clinical behaviors and different therapeutic requirements, yet have an identical histologic appearance.
- The histologic diagnosis should not be the final diagnosis, and cannot be used as a therapeutic guideline. The diagnosis should be based on physical exam findings and microscopic observations seen on skin biopsies.
- Staging of cutaneous lymphomas is important to determine prognosis and to select the appropriate treatment.
- It's important for patients to be an engaged and empowered partner in care collaboration with their physician.
In addition to the clinical presentations, three wonderful patients, Billy Williams, LeDawn Feris and Jeffrey Stevens shared their insights, experiences and humorous stories and offered an invitation to everyone in the Dallas/Ft. Worth area to join them for their next cutaneous lymphoma support group meeting. We will share details on our website when available.
Comments from attendees included:
Most helpful was...the presenters and all the information presented in clear, precise formats. They made it easy to understand and gave me some of the answers I was looking for. Thank you.
Speakers were most helpful, practical and made something scary understandable.
Most helpful was....hearing directly from patients, mixture of humor and information.
Very informative...good overview of disease and to talk and share with other people.