For Medical Professionals

Publications and Resources

The Cutaneous Lymphoma Foundation is pleased to provide the following resources to healthcare providers to assist them in their work treating and caring for patients living with cutaneous lymphoma:

Form Letter for UV Phototherapy Reimbursement Justification with medical literature references

Click here to view/download this form letter.

National Comprehensive Cancer Network (NCCN) Practice Guidelines in Oncology for Mycosis Fungoides/Sezary Syndrome

Click here to view/download these guidelines.  Mycosis fungoides and Sezary syndrome guidelines are on pages 62-70.

2009 Cutaneous Lymphoma Summit Proceedings

Click here to view/download the 2009 Cutaneous Lymphoma Summit Proceedings.

Quality of Life Study

Click here to view/download the Quality of Life Study funded by the Cutaneous Lymphoma Foundation.

CTCL Epidemiology Study

Click here to view/download the CTCL Epidemiology Study funded by the Cutaneous Lymphoma Foundation.

The Long Journey:  A Mini-Movie About Early Diagnosis of Cutaneous T-Cell Lymphoma

Click here to view/download a mini-movie that highlights the complex signs and symptoms of cutaneous T-cell lymphoma, which often mimic other diseases including psoriasis and eczema.

Click on the following links to download a variety of articles/resources:

Revisions to the staging and classification of mycosis fungoides and Sezary syndrome: a proposal of the International Society for Cutaneous Lymphomas (ISCL) and the cutaneous lymphoma task force of the European Organization of Research and Treatment of Cancer (EORTC).  Elise Olsen, Eric Vonderheid, Nicola Pimpinelli, Rein Willemze, Youn Kim, Robert Knobler, Herschel Zackheim, Madeleine Duvic, Teresa Estrach, Stanford Lamberg, Gary Wood, Reinhard Dummer, Annamari Ranki, Gunter Burg, Peter Heald, Mark Pittelkow, Maria-Grazia Bernengo, Wolfram Sterry, Liliane Laroche, Franz Trautinger, and Sean Whittaker.  Blood, May 2007.

EORTC consensus recommendations for the treatment of mycosis fungoides/Sezary syndrome. Franz Trautinger, Robert Knobler, Rein Willemze, Ketty Peris, Rudolph Stadler, Liliane Laroche, Michel D'Incan, Annamari Ranki, Nicola Pimpinelli, Pablo Oritz-Romero, Reinhard Dummer, Teresa Estrach, and Sean Whittaker.  European Journal of Cancer, 2006.

WHO-EORTC classification for cutaneous lymphomas.  Rein Willemze, Elain S. Jaffe, Gunter Burg, Lorenzo Cerroni, Emilio Berti, Steven H. Swerdlow, Elisabeth Ralfkiaer, Sergio Chimenti, Jose L. Diaz-Perez, Lyn M. Duncan, Florent Grange, Nancy Lee Harris, Werner Kemptf, Helmut Kerl, Michael Kurrer, Robert Knobler, Nicola Pimpinelli, Christian Sander, Marco Santucci, Wolfram Sterry, Maarten H. Vermeer, Janine Wechsler, Sean Whittaker, and Chris J.L. M. Meijer.  Blood, May 2005.

Mycosis fungoides and Sezary syndrome. Sam T. Hwang, John E. Janik, Elaine S. Jaffe, and Wyndham H. Wilson. Lancet 2008.

Immunopathogenesis and therapy of cutaneous T-cell lymphoma.  Ellen J. Kim, Stephen Hess, Stephen K. Richardson, Sara Newton, Louise C. Showe, Bernice M. Benoit, Ravi Ubriani, Carmela C. Vittorio, Jacqueline M. Junkins-Hopkins, Maria Wysocka, and Alain H. Rook.  The Journal of Clinical Investigation, April 2005.

The spectrum of hair loss in patients with mycosis fungoides and Sezary syndrome. Ming Yang Bi, AB, Jonathan L. Curry, MD, Angela M. Christiano, PhD, Maria K. Hordinsky, MD, David A. Norris, MD, Vera H. Price, MD, and Madeleine Duvic, MD.  Journal of the American Academy of Dermatology, November 2010.

Peripheral T-cell Lymphoma.  Francine M. Foss, Pier Luigi Zinzani, Julie M. Vose, Randy D. Gascoyne, Steve T. Rosen, and Kensei Tobinai. Blood, June 2011.